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Biography
Name
Lystra
Nickname
Lystra
Year of Birth
11/07/1962
Gender
Female
Location
Anderson SC
Relationship
Patient
Short Bio
Diagnosed with PPFE a rare form of scarring in upper lobes of lungs that follows IPF closely but slowly progresses. Also possible autoimmune disease. On Cellcept and Ofev.
Type of Diagnosis
IPF
Current medication regimen
Ofev and Cellcept
Lung transplantation status
to be determined
Supplemental Oxygen
no
Best advice for PF symptom management
Exercise every single day if possible and keep moving.
Are you currently taking an anti-fibrotic medication?
yes
How did you find us?
PF News Website
How long have you or the person that you are caring for had PF?
2 years
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