Biography

Name

Lystra

Nickname

lystra

Year of Birth

11/07/1962

Gender

Female

Location

Anderson SC

Relationship

Patient

Short Bio

Diagnosed with PPFE a rare form of scarring in upper lobes of lungs that follows IPF closely but slowly progresses.  Also possible autoimmune disease.  On Cellcept and Ofev.

Type of Diagnosis

IPF

Current medication regimen

Ofev and Cellcept

Lung transplantation status

to be determined

Supplemental Oxygen

no

Best advice for PF symptom management

Exercise every single day if possible and keep moving.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

2 years

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