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Hi Trish, thank you for sharing. My husband was approved for a transplant yesterday. He deteriorated rapidly between October and December. He went into hospital mid December and they told us that he did not meet the 6 minute walk requirement plus his age, he is 74. However they kept him in the hospital with a treatment of a corticoide and…[Read more]

My husband suffers from iPF and he is now on oxygen. It is so sad seeing people looking at us with fear when he coughs even though they can see the oxygen tank and he wear a face shield. Actually we went to see our GP this morning and even though we were the only ones on the waiting area, one of the other assistants kept looking at us constantly.…[Read more]

Hello James, my husband is now in an advanced stafe of IPF and he coughs for at least 20 minutes in the morning which leaves him exhausted, he is on oxygen 24/7. Nothing seems to help but as Susan mentioned, he thinks it is related to post nasal drip. Actually today the GP gave him a prescription for nasal drops, hopefully they will help.
thanks…[Read more]

Hello – I think your body might adjust somehow, try eating small amounts more often. My husband (74) recently switched from Esbriet to OFEV he is trying to eat something every  3/4 hours.  He is experiencing vomiting, has anybody experience this with OFEV? It is not related to what he eats, it just happens.

This is the first time I write something but I have been reading the news for a long time.
My husband was diagnosed with IPF by chance several years ago, they did an x-ray for something else and they discovered he had IPF.  He was taking Esbriet which worked very well until this year, now he is taking Ofev and he is on supplemental oxygen 24/7…[Read more]