Got diagnosed in 2000, being 29 years old. Still alive, but at an unbelievable cost. I’m Greek, the only medicine administered is cortizone and azathioprine. Nothing else. Esbriet and Ofev came too late as choices. Not for such severe conditions, doctors said. 3l o2 24/7 since 2015… spine fractured due to osteoporosis. Both feet, too. Both eyes operated… bad teeth, swollen body and face… I do not give up, though. I have a son, he turned 15 last week. He is the only reason I keep fighting. I feel so disappointed, as you said, ipf has robbed me of my youth, my everything… Even transplantations have stopped being performed in my country. Medical insurance does not cover this operation abroad…