• Just to clarify what my diagnoses (listed in the subject area) are Connective Tissue Disease- Interstitial Lung Disease(CTD-ILD) basically brought on by these 3 autoimmune disorders Sjogren’s Syndrome, polymyositis, and Antisynthetase syndrome. I am currently under the care of a rheumatologist, pulmonologist, lung transplant pulmonologist, ophthalmologist, neurologist, and possibly a cardiologist (still undergoing a Holter study). I am on oxygen 24/7 using a large concentrator while at home and a portable concentrator when I am out and about. Usually 2L while at rest at home but up to 4L if is am doing something. When I am out and moving I can range from 3-6L I am taking 2o mg of prednisone, 3000 mg of mycophenolate (CellCept), <span style=”font-weight: 400;”>Sucralfate (heartburn/GERD), Xiidra eyedrops (dry eyes from Sjogren’s), Refresh gel drops (dry eyes from Sjogren’s), Potassium, Magnesium,  and a few other things.  I am not on the lung transplant list at this time — trying to get the attack on the lungs a little more under control. I hope this is helpful. </span>

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