@marlene-west
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Marlene West posted a new activity comment 4 years, 3 months ago
I find that eating the right food is imperative for those of us who suffer from IPF/Bronchiectasis/Asthma. You have to do everything possible to help yourself.
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Marlene West posted a new activity comment 4 years, 3 months ago
I am very fortunate Charlene as I can still manage deep inhalation. Despite the condition of my oxygen levels are really good because I use a Bioptron lamp that oxygenates tissue. It is not easy to navigate all the advice and medicines that doctors suggest but I trust in my own judgement. You can’t take Spiriva if you have had an irregular…[Read more]
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Hi @marlene-west,
Thanks for getting back to me, as I am always curious to hear what others think of their inhalers. I’m glad you can still take a deep enough breath to use the Symbicort, especially if it is helping you. Good for you for trusting in your own judgement, and finding ways to get the information you need. It can be so overwhelming to…[Read more]
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Marlene West posted an update 4 years, 3 months ago
Hi Everyone,
Nice to find this forum and read the views and stories of other people. I have pulmonary fibrosis/bronchiectasis/asthma which has caused a serious heart problem. On symbicort, ventolin and half tablet of amiodorone for heart. I don’t worry about dying it holds no fear for me. Just take one day at a time.-
Hi @marlene-west,
Thanks so much for writing to us, I am glad you found us as well. This is such a wonderful group of people – very encouraging, supportive and dedicated to helping others navigate this illness. Feel free to write any time, and welcome again!
I am also on a combination of Symbicort and ventolin. I struggle with the deep…[Read more]
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Marlene West became a registered member 4 years, 3 months ago
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Welcome to the PF forums Marlen. Thanks for joining us!
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Marlene West's profile was updated 4 years, 3 months ago
Couldn’t agree more @marlene-west, this is so important for optimizing our bodies to fight this illness as best it can. Whole foods, with a balance of everything from the National Food Guide. This also helps our immune system which in turn prevents us from catching viruses that wreck havoc on our IPF as well. Take good care, and thanks again for…[Read more]