MaryLou Ward

Yes add me to your zoom meeting/discussion.  My breathing is such that it takes me a while to say something…. Diagnosed 11 years ago now on 6 lpm 02.

I do the same thing but my respiratory rate only goes up to 30.  I try to slow it down by doing the breath hold and it does come down. Something sounds like your heart might be effected.

Your wife knows herbs.  Wish she was mine. Lol

I still boil and drink my herbs.  I’m declining but my lungs are moist and I don’t have the dry cough, which I’m happy about.   Sorry no cure found in herbs.  I’ll keep going though.

I do take NAC per my md recommendation. The other two I will check on.  Thank you for the information.  I’m working with a herbalist and we keep an eye on my prescribed meds and the interaction with my herbs.

Hi Steve

i had read about the WEI and decided to find my own herbalist.   That was two years ago.  I’m no means cured but my lungs are moistened and my dry cough is helped.    I did take the WEI soup recipe to my herbalists and he made it to me specifically.    IT has taken a while to get my own recipe but I feel I’m nourishing my body with the…[Read more]

I do have stomach upset issues but found if I have something in my stomach when drinking my herbs.  I boil my own herbs.  I like the smell and taste.  I maybe strange.  Lol

the triggers set off my cough also.  I boil a herb, Gus Lou Shi, for my cough.  Sometimes it helps and sometimes it doesn’t.   Thank you all for your comments on a cough.  I don’t feel as along in the world.

I buy my herbs at my local herbalist and it’s about $400 a month.

Hi, I’m marylou and I have had IPF for 3 years or diagnosed.  I too saw the Wei article  and got there soup recipe. Then decided to find a herbalist locally because the Wei location was 350 miles away.   I started on the basic soup then my herbalist started making little changes to fit me.   This was about 1 1/2 year ago.  About a month ago I star…[Read more]

Thank you Charlene for your wisdom.  I have gotten so much information from this site. It’s wonderful.  All the people writing to you have been an inspiration.

First time commenting. I’ve had IPF OR DIAGNOSED for 3 years and I’m 76 yo.  I was thinking I would put a mask over the import of my simply go concentrator.   I treat my concentrator as a pet, I call him Spike.

First time commenting. I’ve had IPF OR DIAGNOSED for 3 years and I’m 76 yo.  I was thinking I would put a mask over the imput of my simply go concentrator.   I treat my concentrator as a pet, I call him Spike.

Hi, I have read so many of your articles and so glad your out there. Bless you. I’m not secure with lifting restrictions. But I understand why.   I will wear a mask with others until my last breath.  This disease has changed where I go and when.  I enjoy being at hometo do the manny things I have always wanted to do.   Keep up the good work.