• May Mya Win became a registered member 2 years, 9 months ago

    • Welcome to the PF forums May Mya, thanks for joining us!

    • Hi @maymyawin. thank you so much for the update although I’m sorry to hear the Ofev didn’t pan out well for you. How is the Pirfenidone going for you, are you tolerating it a bit better and waiting to see how your liver tolerates this anti-fibrotic? Holding you close in my thoughts as you transition on this medication and hoping it works for you. Thank you for all of your kind words, I will absolutely keep writing!

      Warm regards,
      Charlene.

      • Dear Charlene
        Thanks for your interest.
        I am tolerating the new medication.
        I hate having to avoid the sun. I have to stick to the rules though.
        My first liver function test at the end of one week was acceptable. The dose has to be increased and I hope my liver will not complain.
        I have no tummy discomforts so far and I am keeping my fingers crossed.
        I haven’t done a PFT yet as my doctor says it is too early.
        Thank you so much for your thoughts and support.
        Warm regards
        May Mya Win

        • Hi May Mya,

          Thanks for getting back in touch and letting me know that you’re tolerating the medication as well as possible. I’ll keep my fingers crossed that your liver numbers tolerate the increase in the medications, and that your side effects remain minimal. Sorry you have to avoid the sun – that is tough as I am a sun-seeker as well!

          Take care, and connect back anytime.

          Warm regards,
          Charlene.

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