Mark Bowden replied to the topic Life span in the forum Diagnosis Information and General Questions 6 months, 1 week ago
The best advice I every read was from the late Steve Jobs in a commencement speech he gave at Stanford in 2005, five years before he died of pancreatic cancer. Jobs says we should live each day as if it were our last day, as inevitably that (our last day) will be the case for all of us some day. It’s about attitude. Fix what you can and accept wh…[Read more]
Mark Bowden replied to the topic OFEV purchase in the forum Ofev (Nintedanib) 2 years, 3 months ago
Hello, Byron – I recently was prescribedOfev and am also interested in foreign sources for this highly expensive medicine. I see online that an India pharmaceutical co. has its on version of nintedanib. I don’t know there is much difference in price. Still exploring. Meanwhile, what happened that you are no longer eligible for assistance? I am…[Read more]
Mark Bowden replied to the topic Life span in the forum Diagnosis Information and General Questions 2 years, 3 months ago
Hello, Pam and others – I have been blessed. When I was diagnosed in the spring of 1996 (25 years ago), I could not take more than a few steps without being breathless. I could not shower as the warm, moist air made it impossible to breathe. I coughed so much my throat was raw. I was prescribed a steroid. The pulmonologist gave me 6 months to a…[Read more]
Mark Bowden replied to the topic Ofev Users can Safely take Ofev on a Long Term Basis in the forum Ofev (Nintedanib) 2 years, 4 months ago
Hello, Mark K – any insight/ personal experience on when side effects of OFEV commence ? I am finishing my first week on 150 mg. I have read the literature, perhaps too much, as I am Very anxious about this medicine, coming off the starting blocks. Thank you. Mark B
Mark Bowden became a registered member 2 years, 4 months ago
Hello Mark, welcome and thank you for joining your pulmonary fibrosis forum.
Mark, I saw you have requested again to be a member. I denied the request as you are already a member of the pf forum.