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Mark Bowden replied to the topic OFEV purchase in the forum Ofev (Nintedanib) 1 week, 3 days ago
Hello, Byron – I recently was prescribedOfev and am also interested in foreign sources for this highly expensive medicine. I see online that an India pharmaceutical co. has its on version of nintedanib. I don’t know there is much difference in price. Still exploring. Meanwhile, what happened that you are no longer eligible for assistance? I am…[Read more]
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Mark Bowden replied to the topic Life span in the forum Diagnosis Information and General Questions 2 weeks, 5 days ago
Hello, Pam and others – I have been blessed. When I was diagnosed in the spring of 1996 (25 years ago), I could not take more than a few steps without being breathless. I could not shower as the warm, moist air made it impossible to breathe. I coughed so much my throat was raw. I was prescribed a steroid. The pulmonologist gave me 6 months to a…[Read more]
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Mark Bowden replied to the topic Ofev Users can Safely take Ofev on a Long Term Basis in the forum Ofev (Nintedanib) 1 month ago
Hello, Mark K – any insight/ personal experience on when side effects of OFEV commence ? I am finishing my first week on 150 mg. I have read the literature, perhaps too much, as I am Very anxious about this medicine, coming off the starting blocks. Thank you. Mark B
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Mark Bowden became a registered member 1 month, 2 weeks ago
Hello Mark, welcome and thank you for joining your pulmonary fibrosis forum.
Mark, I saw you have requested again to be a member. I denied the request as you are already a member of the pf forum.