Manzurul Khan

I live in the Houston area. Can you share the name of the Clinic and contact information? I don’t have any idea if my insurance will pay for the treatment. How much does it cost monthly? Does VA cover your expenses?
Thanks.

Kathryn,
I am so sorry for your loss. As humans, we can only do much and feel powerless after that. Please do not blame yourself. There will be a time for all of us to bid farewell to Earth. I just hope it’s in my sleep and relatively pain free.
God Bless.

I also believe herbs can make a difference in your breathing ability. I called Wei Institute right after I was diagnosed and was about to try their product. But I could not justify the cost ($3000 for 3 month supply). I started running and taking EGCG extract, green tea and other herbs such as ginger, turmeric and cinnamon. My recent breathing…[Read more]

I started taking EGCG (350 mg capsules) right after I was diagnosed in late October. I also drink green teat each day. I read the same research report and felt I could not lose anything by taking the extract. I also changed my diet completely with anti-inflammation items replacing anything that causes inflammation. I have not lost weight in 5…[Read more]

I can’t agree that staying away from the Internet is always a good thing. I picked up so much valuable information by deep diving on the Internet. When my doctor diagnosed me 5 months ago from an X-Ray and pronounced that I had 3-5 years to live, it was a debilitating feeling. I started my own research and after applying many of the ideas I picked…[Read more]

Hello James,

I live in Houston, TX and joined a group in Dallas area called PF Warriors. They hold monthly meetings and have great presenters. I attended the last 2 and got lots of new information on Oxygen therapy and other topics. Look them up on Google. I am also looking for a second opinion and someone with established authority in this field…[Read more]

Hi everyone,

I believe the 3-5 years estimate given by a pulmonologist is a disservice to most patients. When I was diagnosed on October, 2020 and told I had 3-5 left to live, it triggered a series of reactions inside me which were mostly harmful. Fortunately for me, I had a supportive family who refused to accept this and pointed to my overall…[Read more]

To Pete and all those who contribute,

I have gained so much from your shared experiences. I feel I belong to a community who are caring, selfless and pulling for one another. I am in early stages and the journey ahead will be long, I hope. And from what I have learned here, I will benefit in easing my burden. I want to quote the words of our…[Read more]

I am a 67 year old male and was diagnosed 4 months ago. I have resisted my doctor’s advice to start taking Ofev or Esbriet in recent weeks. He thinks I should choose one of the 2 to avoid an acute progression since it’s in early stages now. I plan to see another doctor at Baylor College of Medicine before I do that. I am worried about the side…[Read more]

I read all your posts with interest since I am also dabbling with the idea of experimenting with Wei Labs products. I was diagnosed with early stage IPF almost by accident in late October during a routine physical. I thought I was healthy since I lead an active lifestyle with regular jogging, brisk walks and tennis. When I was refereed to my…[Read more]