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Michael Kessler

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@michael-kessler

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    Michael Kessler replied to the topic Palliative Care and Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 10 months ago

    Hi:

    I was able to enroll my wife (age 77) with IPF diagnosed 3 1/2 yrs ago, on oxy 24/7 at 8L.

    I had read about it for quite a while and finally decided it was something that would be of great benefit for her.

    I can only say it has been wonderful and so glad she is receiving the added care and attention she needs. They are truly on the ball and…[Read more]

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    Michael Kessler replied to the topic PFTs and a Reduction in DLCO Number. in the forum Upcoming Medical Appointments: Q&As 2 years, 11 months ago

    Hi there:

    For what its worth my wife’s DLCO went from 45 down to 15! I nearly panicked when I saw that number but never said anything to my wife as she would have worried herself crazy. That was over a year ago.

    She is is on O2 ,24/7 @6 lpm.

    Her other pft numbers also decreased but not that dramatic.

    I don’t believe there is much that can be…[Read more]

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    Michael Kessler replied to the topic Flash Briefing: IPF Patients Switching to Esbriet to Ofev Stopping Treatments, Possibly Due to Low BMI in the forum Flash Briefings & Podcasts 3 years, 2 months ago

    My wife was started on Ofev 2yrs ago. After 6 mo the side effects (diarrhrea) became intolerable and was taken off for about 4 months then switched to Esbriet a year ago. Has had minimal side effects and tolerates it quite well. She is also has been on Cellcept and a low dose of Prednisone for about 2 yrs and is on 6L O2  24/7.

     

     

     

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    Michael Kessler became a registered member 3 years, 3 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years, 3 months ago

      Hello Michael, welcome to your pulmonary fibrosis forum. Thank you for joining.

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