Michael Kessler replied to the topic Palliative Care and Pulmonary Fibrosis in the forum Diagnosis Information and General Questions 3 years, 6 months ago
I was able to enroll my wife (age 77) with IPF diagnosed 3 1/2 yrs ago, on oxy 24/7 at 8L.
I had read about it for quite a while and finally decided it was something that would be of great benefit for her.
I can only say it has been wonderful and so glad she is receiving the added care and attention she needs. They are truly on the ball and…[Read more]
Michael Kessler replied to the topic PFTs and a Reduction in DLCO Number. in the forum Upcoming Medical Appointments: Q&As 3 years, 7 months ago
For what its worth my wife’s DLCO went from 45 down to 15! I nearly panicked when I saw that number but never said anything to my wife as she would have worried herself crazy. That was over a year ago.
She is is on O2 ,24/7 @6 lpm.
Her other pft numbers also decreased but not that dramatic.
I don’t believe there is much that can be…[Read more]
Michael Kessler replied to the topic Flash Briefing: IPF Patients Switching to Esbriet to Ofev Stopping Treatments, Possibly Due to Low BMI in the forum Flash Briefings & Podcasts 3 years, 10 months ago
My wife was started on Ofev 2yrs ago. After 6 mo the side effects (diarrhrea) became intolerable and was taken off for about 4 months then switched to Esbriet a year ago. Has had minimal side effects and tolerates it quite well. She is also has been on Cellcept and a low dose of Prednisone for about 2 yrs and is on 6L O2 24/7.
Michael Kessler became a registered member 3 years, 10 months ago
Hello Michael, welcome to your pulmonary fibrosis forum. Thank you for joining.