Michael Morale

Hi Chuck, the moderator for the Pulmonary Fibrosis News forum will return on Monday, and will answer any questions you have. Thank you for participating in the discussions, and we look forward to helping you as much as possible.

Doesn’t it amazing you how much money these companies are charging for their treatments?

Michael, I’m the manager of the forums, and while I do not have Pulmonary Fibrosis, I do have Spinal Muscular Atrophy (SMA). I am currently on the first FDA approved treatment for SMA. My first four injections, which they call loading doses, cost $750,000. My…[Read more]

I’m glad that you haven’t had any additional symptoms Michael. Charlene is a great source of information and I’m glad that you’re part of this forum. Please let us know if we can be of any further assistance to you.

Hi Claudia, thank you for your comments about the forum. We’re glad that you find it helpful and we hope that you continue monitoring the forum. Please feel free to ask questions and we will do everything we can to answer any questions that you may have. Have a wonderful day.

I tell myself all the time, then when I sing in the shower, I think I can put Luciana Pavarotti to shame. If they would allow me to go on American Idol, and take my shower with me, I would not only win the competition, I would be rich. Lucky for me, I have so many good friends who keep reminding me that only dogs and certain farm animals are able…[Read more]

It is definitely difficult to un-ring the bell. I don’t think I’ve ever been that rude to anyone, and I can only imagine how hurt you are after hearing his. I’m not a psychologist and I’m definitely not a professional who deals with relationship issues, but I hope that you can find a way to get past this and still be able to be friends with…[Read more]

This is a great discussion everyone. While I personally do not suffer from Pulmonary Fibrosis, I suffer from spinal muscular atrophy, which can also affect the pulmonary system. I would like to say that I am a singer, but my close friends tell me that if I was sitting for candy, I wouldn’t get a lick lick. Without being said, I noticed that when I…[Read more]