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Michael Fugler replied to the topic When should you start antifibrotics? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week ago
The short answer is the same as Jeff’s, “start them as soon as you can”, with the same caveat, medical supervision and they are expensive so check your insurance. I am not a medical doctor but I feel like I have graduated to something more than a layman’s opinion as I have studied IPF for hundreds of hours for almost 5 years since my original dia…[Read more]
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Michael Fugler replied to the topic When will first treatment to repair scar tissue become available to humans in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 3 weeks ago
That is a great question, you have me on the edge of my seat in anticipation of a reliable reply and most important a timeline. I wish I could provide more information than support!
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Michael Fugler replied to the topic Do others with IPF cough for 20 minutes every morning? in the forum Living with Pulmonary Fibrosis: 50+ 7 months, 3 weeks ago
IPF since 2018, took 1 year to officially confirm diagnosis and put me on OFEV, not yet on O2, as to coughing, yes, 20+ minutes every morning, I have found (for me) benzanotate (Tessalon perles) do help about 30-60 minutes after I take them, also cough drops, to keep back of throat moist helps keep the post nasal easier to clear from…[Read more]
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Michael Fugler replied to the topic Newbie, where do I start? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 10 months ago
I was diagnosed with IPF 2018. My Doctor suggested I attend the National Summit in San Antonio November 7, 2019 and I was so appreciative that he told me about it and that I attended with my wife. I learned a lot about my disease from some of the very best medical and scientific minds in the country and was able to procure numerous brochures and…[Read more]
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Michael Fugler started the topic 2019 National IPF Summit San Antonio in the forum Pulmonary Fibrosis Awareness & Advocacy 1 year, 10 months ago
<span style=”caret-color: #000000; color: #000000; font-family: Roboto, Helvetica, Arial, sans-serif;”>I was diagnosed with IPF 2018. My Doctor suggested I attend the National Summit in San Antonio November 7, 2019 and I was so appreciative that he told me about it and that I attended with my wife. I learned a lot about my disease from some of the…[Read more]
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Michael Fugler posted a new activity comment 1 year, 10 months ago
Thank you, I have enjoyed receiving and reading all the “Posts” and comments. People sharing their struggles, trials and tribulations has been very helpful to demonstrate we are not alone and there are positive things we can lean from each other in our own journey!
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Michael Fugler became a registered member 2 years, 6 months ago
Welcome to the PF forums Michael. Thanks for joining us!
Thank you, I have enjoyed receiving and reading all the “Posts” and comments. People sharing their struggles, trials and tribulations has been very helpful to demonstrate we are not alone and there are positive things we can lean from each other in our own journey!