Allan Birmantas
Biography
Name | Allan Birmantas |
Nickname | allan-birmantas |
Year of Birth | 1936 |
Gender | Male |
Location | Kewanee, Il |
Relationship | Patient |
Short Bio | I just recently found out that I was diagnosed with Pulmonary Fibrosis in 2018. My doctor who is a PA never mentioned this to me.When I asked about my test results, her answer was “so sorry Allan”.She never said why she was sorry and for some reason I never asked. A few years earlier they told me I had the beginnings of COPD but never made it seem important. Toward the end of 2019 when I mentioned I was having difficulty breathing, she put me on an inhaler. Still never mentioning PF. I decided to look at my last xray that was done in 2019 and in reading the report found out myself.When I looked up the disease I found out how serious this is, actually life threatening. Or life ending. I have an appt to see my PA this Friday and hoping to get some answers. My wife is looking into finding a PF specialist but in our area it is not looking good. She was the one that found this site.I feel such despair and truth be told, I am scared. I cannot walk very far or do much of anything because I cannot breath. My wife is searching for a PF specialist. She feels my PA is inadequate and I am beginning to feel the same. Why this was never explained to me and the fact I had to find out for myself , makes me think she is correct. |
Treatment / Medical Facility | albuterol Sulfate inhaler/OSF clinic |
Current medication regimen | use inhaler 4X daily |
Lung transplantation status | ineligible |
Supplemental Oxygen | no |
Best advice for PF symptom management | I have not been given any. |
Are you currently taking an anti-fibrotic medication? | no |
How did you find us? | Other |
How long have you or the person that you are caring for had PF? | I am not sure, The first xray that mentions this was in 2018. |
Privacy Policy and Terms of Use | I agree |