Biography

Name

Allan Birmantas

Nickname

allan-birmantas

Year of Birth

1936

Gender

Male

Location

Kewanee, Il

Relationship

Patient

Short Bio

I just recently found out that I was diagnosed with Pulmonary Fibrosis in 2018. My doctor who is a PA never mentioned this to me.When I asked about my test results, her answer was “so sorry Allan”.She never said why she was sorry and for some reason I never asked. A few years earlier they told me I had the beginnings of COPD but never made it seem important. Toward the end of 2019 when I mentioned I was having difficulty breathing, she put me on an inhaler. Still never mentioning PF. I decided to look at my last xray that was done in 2019 and in reading the report found out myself.When I looked up the disease I found out how serious this is, actually life threatening. Or life ending. I have an appt to see my PA this Friday and hoping to get some answers. My wife is looking into finding a PF specialist but in our area it is not looking good. She was the one that found this site.I feel such despair and truth be told, I am scared. I cannot walk very far or do much of anything because I cannot breath. My wife is searching for a PF specialist. She feels my PA is inadequate and I am beginning to feel the same. Why this was never explained to me and the fact I had to find out for myself , makes me think she is correct.

Treatment / Medical Facility

albuterol Sulfate inhaler/OSF clinic

Current medication regimen

use inhaler 4X daily

Lung transplantation status

ineligible

Supplemental Oxygen

no

Best advice for PF symptom management

I have not been given any.

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Other

How long have you or the person that you are caring for had PF?

I am not sure, The first xray that mentions this was in 2018.

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