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Midge Sanford replied to the topic Esbriet and coughing in the forum Esbriet (Pirfenidone) 2 months, 2 weeks ago
I have a dry cough (I cough throughout the day) and am on Esbriet. I used to cough more when lying on one pillow when ready to go to sleep, but have added a pillow and my cough is much better as a result. Worth a try!
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Midge Sanford replied to the topic Telling your family in the forum Living with Pulmonary Fibrosis: 50+ 9 months, 3 weeks ago
I was diagnosed in July 2019, at age 77, and did not tell my adult children for over a year. I agonized over this decision, but realized that being honest was the right thing to do. I called each of them and they very much appreciated it. I told them the name of the disease but did not go into detail about the seriousness of pulmonary fibrosis and…[Read more]
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Midge Sanford replied to the topic Esbriet – Insurance approval in the forum Esbriet (Pirfenidone) 1 year ago
When my Medicare Part D Insurance did not cover Esbriet, my pulmonologist’s pharmacy (at Cedar’s Sinai in Los Angeles) got me in touch with Genentech, the manufacturer, and I have been getting the medication for FREE for the last year and a half or so. Good luck! See below:
SUPPORT
Genentech Patient Resource Center
Our center dedicated to getting…[Read more] -
Midge Sanford started the topic Gagging in the forum Using Our Forums 1 year, 3 months ago
I have been diagnosed with PF about 2 years ago and have been taking esbriet. I am tolerating it for the most part, but in the last couple of months have had trouble with gagging when brushing my teeth with an electronic toothbrush and when using my inhaler. Has anyone else experienced this?
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Midge Sanford replied to the topic Gaining weight in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 8 months ago
I too have been struggling to maintain my weight and not lose anymore. (I have lost about 10 pounds in the last year and a half.) I am eating foods I was very careful about before my diagnosis — like ice cream and cookies, which I now have every day! I am on esbriet and it has changed my appetite, food aversions etc. I have scheduled an…[Read more]
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Midge Sanford became a registered member 1 year, 8 months ago
Welcome to the PF forums Midge. Thanks for joining us!