Midge Sanford

I was diagnosed in July 2019, at age 77, and did not tell my adult children for over a year. I agonized over this decision, but realized that being honest was the right thing to do. I called each of them and they very much appreciated it. I told them the name of the disease but did not go into detail about the seriousness of pulmonary fibrosis and…[Read more]

When my Medicare Part D Insurance did not cover Esbriet, my pulmonologist’s pharmacy (at Cedar’s Sinai in Los Angeles) got me in touch with Genentech, the manufacturer, and I have been getting the medication for FREE for the last year and a half or so. Good luck! See below:

SUPPORT
Genentech Patient Resource Center
Our center dedicated to getting…[Read more]

I too have been struggling to maintain my weight and not lose anymore. (I have lost about 10 pounds in the last year and a half.) I am eating foods I was very careful about before my diagnosis — like ice cream and cookies, which I now have every day! I am on esbriet and it has changed my appetite, food aversions etc. I have scheduled an…[Read more]