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Mike McCutcheon replied to the topic "Breathless" Transplant News in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 3 months ago
I was diagnosed with IPF March 2019 and was on Esbriet but made me sick. Tried lowering the dose but just didn’t work. In 2021 went on oxygen 24/7 and in Sept 2021 was admitted with pulmonary embolism in each lung and put on high flow oxygen. I was put on top of the lung transplant list got a new right lung on October 30th. I never really had a c…[Read more]
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Mike McCutcheon replied to the topic Help for High Oxygen User Nasal Pain in the forum Using Our Forums 1 year, 3 months ago
I have had great results from AYR gel a OTC available at most drug stores
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Mike McCutcheon replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 1 year, 4 months ago
I just got a right lung transplant on Oct 30, 2021. I was on high flow oxygen 24/7. It moved me to the top of the lung waiting list. My thought was in 3 months I’m in a Urn or have a new lung. Time will tell how long I have. I’ll have to wait and see. Doing well so far
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Mike McCutcheon replied to the topic Passing along what is working for me. in the forum Ofev (Nintedanib) 1 year, 9 months ago
I take 3,000 mg Cellcept and 40mg prednisone and 6 Esbriet 267 mg per day. Had serious diarrhea but started Imodium a week ago and it went away
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Mike McCutcheon replied to the topic Concentrator nasal cannula storage in the forum Diagnosis Information and General Questions 1 year, 9 months ago
I loop the canola around my neck like a rope. It stays there never drags on the floor
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Mike McCutcheon replied to the topic Just started on Prednisone. Would love to hear how predisone had helped you orno in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 9 months ago
Also diagnosed with Interstial lung disease on oxygen 18 hours a day. Going in to Columbia with the lung transplant tests next week. They will let me know if I qualify after 2 days of tests
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Mike McCutcheon replied to the topic Just started on Prednisone. Would love to hear how predisone had helped you orno in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 9 months ago
I have had a chronic cough for 8 years. Nothing had helped till prednisone started on 80mg per day for 2 weeks. After 2 weeks Dr dropped it to 60mg then 2 weeks later down to 40mg. Cough is now back and constant runny nose. Feet and ankles really swollen but hanging in
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Mike McCutcheon posted a new activity comment 1 year, 10 months ago
Thank you very much
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Mike McCutcheon became a registered member 1 year, 10 months ago
Welcome to the PF forums Mike. Thanks for joining us!
Thank you very much