Biography

Name

Brenda Cohen

Nickname

MKE

Last Name

Gleason

Year of Birth

1959

Gender

Female

Location

Milwaukee

Relationship

Family

Short Bio

My husband was diagnosed after an X-ray. Referred to pulmonologist. Pulmonologist referred to Rhuemotologist & found an extremely high Rhetorical Factor. He returned to pulmonologist during that year his pulmonary function studies were great and he was asymptomatic. He started injections of Cymzia. He had a biopsy which was negative.  We moved and new Pulmonologist said he detected progression of Pulmonologist Fibrosis and put him a Esbriet. His health has rapidly diminished & and his pain is controlled by by Celebrex and occasional course of Prednisone. His cognitive decline for expressive language and memory are failing.

Type of Diagnosis

IPF

Treatment / Medical Facility

Outpatient Rheumatologist & Pulmonologist

Current medication regimen

Cymzia 1 x month, Celebrex as needed for joint pain, Esbriet fir PF, & Predsione for flare ups.

Lung transplantation status

to be determined

Supplemental Oxygen

no

Best advice for PF symptom management

He takes 1-2 30-60 minutes daily.

Rest helps. Avoiding confrontation.

Compassion!!!

Are you currently taking an anti-fibrotic medication?

yes

If yes, which anti-fibrotic medication are you on?

Esbriet

How did you find us?

Other

How long have you or the person that you are caring for had PF?

2 years

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