Biography

Name

Marilyn

Nickname

Marilyn Will

Last Name

Will

Year of Birth

05/05/1938

Gender

Female

Location

Minnesota

Relationship

Patient

Short Bio

I’m a retired English teacher. I grew up on a farm with five brothers and one sister. My sister and one of my brothers also contracted pulmonary fibrosis. I was diagnosed 4 months ago after telling my doctor for over two years that something was wrong with my breathing. She did no testing and said that I was just out of shape. I finally walked into an urgent care center. The ensuing testing quickly did the diagnosis. I already had crackling in my lungs.

Type of Diagnosis

familial/genetic PF

Treatment / Medical Facility

Mayo Clinic Rochester, MN

Current medication regimen

None

Lung transplantation status

ineligible

Supplemental Oxygen

no

Best advice for PF symptom management

Don’t over-exert.

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Friend

How long have you or the person that you are caring for had PF?

unknown how long, diagnosed for 3 months.

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