Carol N Lenahan

Wow, what a fun way to work on ones diaphragmatic breathing!  Enjoy.

Thank you Charlene for the kind words and prayers.  Yes I’ve been on the Duke transplant list for 22 days.  Days have gone by fast.  When I mentioned exercise, Duke requires you to do 2 hours a day / 5 days a week at your own pace.  20-30 minutes walking, 20 minutes bike / new-step, 30 minutes of floor exercises and 30 minutes of weights.  This…[Read more]

Good morning to all.  I am here in Durham, NC / Duke University Medical Center waiting for a new lung.  It is important that anyone thinking about a lung transplant MUST understand that this is a lifetime commitment.  Exercise, drug management and lifestyle changes.  This surgery is not like having your appendices removed where after a time per…[Read more]

First of all I’m so sorry that people are given the run around by the insurance companies about funding pulmonary rehab.  Just not right!

BUT please take advantage of local gyms (YMCA), workout facilities etc. while waiting for the insurance company.  Most places have an instructor who will give you guidance, show you how to use the various m…[Read more]

Pulmonary rehab is THE BEST.  I’ve been in rehab for well over 4 years and it makes a whole lot of difference.  Currently I’m at Duke University having been listed for a lung transplant.  Before Duke I participated in several different rehab programs and both of them gave me the foundation to be prepared for a transplant.  Duke’s program req…[Read more]

Hi, I am Carol and I was diagnosed with IPF in 2016.  I had a lung biopsy to confirm the diagnoses. I was on Ofev for almost 1 year but I lost 60 lbs and looked like death warmed over.  I have been off of it for about a year and have added some pounds back. I’m not sure I want to start Esbriet.  We’ve moved from NYS to GA and I find myself ex…[Read more]