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Pat and
Marsha are now friends 7 months, 3 weeks ago
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Marsha replied to the topic Passing along what is working for me. in the forum Ofev (Nintedanib) 1 year, 9 months ago
Alex-
i was diagnosed with IPF in 2018. I began taking Ofev shortly after diagnosis. I had a Moh’s procedure for basal cell carcinoma on my scalp, 12/2020. I’ve had crazy nerve pain and other unexplained symptoms. The wound has been slow to heal and my scalp is still numb. I get terrible migraines as well.I had no idea that some of this may ste…[Read more]
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Marsha replied to the topic Just started on Prednisone. Would love to hear how predisone had helped you orno in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 9 months ago
I was diagnosed with IPF in 2018. I was put on prednisone, slow taper, for an acute exacerbation in early 2020. I’m now taking 10 mg per day. I’m 60 and have now been diagnosed with Osteoporosis. The prednisone did improve my breathing a small bit but I’m not convinced this was worth the trade off. If you are taking prednisone, be sure to see a…[Read more]
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Marsha replied to the topic Post thoracotomy intermittent painful muscle spasm. in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 8 months ago
I’m so sorry to hear others also have these painful muscle spasms! Thank you for sharing! Those back spasms sound terrible, they all sound terrible! My muscle spasm feels like it could be related to my diaphragm but I’ve been told that’s not possible. I’m going to ask if what I’m feeling could possibly be nerve related, as was shared with me. I…[Read more]
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Marsha replied to the topic COVID-19: Wake Up! A Pulmonary Wellness Foundation Film! in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 8 months ago
Thank you so much for this heartbreaking, groundbreaking and so important video! We need this on every news station! This message needs to reach everyone. So many people are still putting others at risk daily. I cannot believe the things my eyes see and my heart aches. I’ve had to put a sign on my front door so people will stop dropping by w…
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Marsha started the topic Post thoracotomy intermittent painful muscle spasm. in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 8 months ago
<p style=”text-align: left;”>Aloha-</p>
i am over two years post thoracotomy for diagnosis if IPF. I am still having extremely strong, painful spasms at the incision under my breast. Most times these spasms occur when I bend forward to tie my shoes or pick up something off the floor. It is like a tight squeezing feeling that makes me clutch my…[Read more] -
Marsha replied to the topic Exercise Routine in the forum Diagnosis Information and General Questions 2 years, 9 months ago
John,
Thank you so very much for this excellent and useful video! This is exactly what I need right now and moving forward. You are fortunate to have found such a good resource so quickly. I also utilize the pulmonary wellness/boot camp by Noah Greenspan as Charlene suggested. Also a great resource. My pulmonary function class shut down due to…[Read more]
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Marsha became a registered member 3 years, 2 months ago