Pulmonary Fibrosis News Forums | CD Roper | Activity https://pulmonaryfibrosisnews.com/forums/members/mtldy35/activity/ Activity feed for CD Roper. Wed, 22 Apr 2026 02:03:37 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 b930799d034f67e988a024968c09b093 CD Roper replied to the discussion 2nd opinion at Cleveland Clinic in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/2nd-opinion-at-cleveland-clinic/#post-29430 Thu, 05 Aug 2021 19:46:48 -0500 Reply to 2nd opinion at Cleveland Clinic

Please give me opinions of where you had transplants done & why. Anyone use Johns Hopkins? What was results & were you happy with results? How did your life improve etc,.,

]]> dbeb3abb9d191a167cf5da07d8c1a095 CD Roper replied to the discussion Recurring cyclical pseudomonas & pneumonia in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/recurring-cyclical-pseudomonas-pneumonia/#post-29328 Tue, 27 Jul 2021 20:14:24 -0500 Reply to Recurring cyclical pseudomonas & pneumonia

Still trying to get full strength back to arms & legs so can climb stairs etc.,. Bt pneumothorax (3), pneumonia &, 4 hospital stays, PT strength gets zapped & start again. As result, only time I leave my home is in an ambulance going to ED. Due to Covid, have dr appts by telephone.

]]> b08617c5e4b3ce02dd0aaabc93664f92 CD Roper started the discussion Recurring cyclical pseudomonas & pneumonia in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/recurring-cyclical-pseudomonas-pneumonia/ Wed, 23 Jun 2021 01:47:54 -0500 Recurring cyclical pseudomonas & pneumonia

Has anyone’s doctor found a way to avoid (or lessen) the cycle of recurring pneumonia & pseudomonas? Had pneumonia in 2019 & was diagnosed with IPF in 2020. In 2021, hospitalized March & April (think sent me home too early). Drs here say some of my meds will cause/make lu gs susceptibile to pneumonia & pseudomonas. Anyone having this problem or… Read more

]]> a1cf1e655b7b9096b888beb7b5a09767 CD Roper posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/26885/#acomment-26886 Tue, 27 Apr 2021 20:45:09 -0500 Oh, new pulmonologist saw fibrosis back in 2007 ON SCANS & CXR (diagnosed with bronchiecstasis 2004, no one told me it could progress into IPF or anything else even close). He can’t explain why I’m still here & fought against me having OFEV thinking no way I’d still be here! A drink or sweets here & there I’ll indulge cuz my only guilty… Read more

In reply to - CD Roper posted an update @jfrazier been posting how I researched OFEV well including support sites. Best tip for me was eating 1/2 meal, take OFEV, finish meal. I also take tinctures, mushrooms extracts that […] ]]> 02412e985284d12aab5f8a38268b3ed4 CD Roper posted an update: @jfrazier been posting how I researched OFEV well […] https://pulmonaryfibrosisnews.com/forums/activity/p/26885/ Tue, 27 Apr 2021 20:34:02 -0500 @jfrazier been posting how I researched OFEV well including support sites. Best tip for me was eating 1/2 meal, take OFEV, finish meal. I also take tinctures, mushrooms extracts that help prevent liver problems & help with ❤️ anxiety prednisone induced diabetes, eat organic, non gmo & gluten free (if available). I never rely solely on… Read more

]]> 1 53dd2f6f85021e5a248fca7591bcfd4a CD Roper posted an update: @nimrod best tip I received from support sites said eat […] https://pulmonaryfibrosisnews.com/forums/activity/p/26883/ Tue, 27 Apr 2021 20:14:27 -0500 @nimrod best tip I received from support sites said eat 1/2 meal then take the OFEV, finish meal. Unload the dairy, sweets, any processed foods (especially whites: sugar, flour, rices etc).

]]> 0 165205c61cd01ab909bad134f895064a CD Roper posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/20553/#acomment-25061 Thu, 21 Jan 2021 20:43:14 -0600 Listening to Motown compilations daily last 2 weeks & that’s great cuz singing is good for lungs too😊

In reply to - CD Roper became a registered member ]]> 18d029af41f9bc36dbaff2dbc7b46619 CD Roper posted an update: Hi everyone! Just a tip about Ofev: did lots of research […] https://pulmonaryfibrosisnews.com/forums/activity/p/25059/ Thu, 21 Jan 2021 20:37:37 -0600 Hi everyone! Just a tip about Ofev: did lots of research on it before starting it. Best tip for me (from a support site) was eat half your meal, take the Ofev, then finish remainder of
meal. Also, have seen various comments about HBP. Prednisone is usually the reason. Once I started taking my own vitals daily, I nearly fainted at the numbers!… Read more

]]> 1 fe29f622f2784348a9541381a1fa3bb3 CD Roper became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/20553/ Tue, 09 Jun 2020 23:29:32 -0500 2