@mtldy35
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CD Roper replied to the topic 2nd opinion at Cleveland Clinic in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago
Please give me opinions of where you had transplants done & why. Anyone use Johns Hopkins? What was results & were you happy with results? How did your life improve etc,.,
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CD Roper replied to the topic Recurring cyclical pseudomonas & pneumonia in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago
Still trying to get full strength back to arms & legs so can climb stairs etc.,. Bt pneumothorax (3), pneumonia &, 4 hospital stays, PT strength gets zapped & start again. As result, only time I leave my home is in an ambulance going to ED. Due to Covid, have dr appts by telephone.
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CD Roper started the topic Recurring cyclical pseudomonas & pneumonia in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago
Has anyone’s doctor found a way to avoid (or lessen) the cycle of recurring pneumonia & pseudomonas? Had pneumonia in 2019 & was diagnosed with IPF in 2020. In 2021, hospitalized March & April (think sent me home too early). Drs here say some of my meds will cause/make lu gs susceptibile to pneumonia & pseudomonas. Anyone having this problem or r…[Read more]
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CD Roper posted a new activity comment 1 year, 9 months ago
Oh, new pulmonologist saw fibrosis back in 2007 ON SCANS & CXR (diagnosed with bronchiecstasis 2004, no one told me it could progress into IPF or anything else even close). He can’t explain why I’m still here & fought against me having OFEV thinking no way I’d still be here! A drink or sweets here & there I’ll indulge cuz my only guilty pleasur…[Read more]
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CD Roper posted an update 1 year, 9 months ago
@jfrazier been posting how I researched OFEV well including support sites. Best tip for me was eating 1/2 meal, take OFEV, finish meal. I also take tinctures, mushrooms extracts that help prevent liver problems & help with ❤️ anxiety prednisone induced diabetes, eat organic, non gmo & gluten free (if available). I never rely solely on American…[Read more]
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CD Roper posted an update 1 year, 9 months ago
@nimrod best tip I received from support sites said eat 1/2 meal then take the OFEV, finish meal. Unload the dairy, sweets, any processed foods (especially whites: sugar, flour, rices etc).
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CD Roper posted a new activity comment 2 years ago
Listening to Motown compilations daily last 2 weeks & that’s great cuz singing is good for lungs too😊
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CD Roper posted an update 2 years ago
Hi everyone! Just a tip about Ofev: did lots of research on it before starting it. Best tip for me (from a support site) was eat half your meal, take the Ofev, then finish remainder of
meal. Also, have seen various comments about HBP. Prednisone is usually the reason. Once I started taking my own vitals daily, I nearly fainted at the numbers! My…[Read more]-
Hello CD, thank you for sharing your experience. I think taking the Ofev in the middle of your meal is a great idea. Have a great breathing day! Mark
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CD Roper became a registered member 2 years, 8 months ago
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Hello CD, we are delighted to have you as a member of the pf forum. Welcome! I love the Motown email. Who doesn’t love Motown. It makes everyone happy and in good spirits. Mark
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Listening to Motown compilations daily last 2 weeks & that’s great cuz singing is good for lungs too😊
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Oh, new pulmonologist saw fibrosis back in 2007 ON SCANS & CXR (diagnosed with bronchiecstasis 2004, no one told me it could progress into IPF or anything else even close). He can’t explain why I’m still here & fought against me having OFEV thinking no way I’d still be here! A drink or sweets here & there I’ll indulge cuz my only guilty pleasur…[Read more]