Jean replied to the topic Side effects of OFEV in the forum Ofev (Nintedanib) 3 years, 2 months ago
I’m 84 years old and was diagnosed with IPF last April. After finding funding for Ofev I started it at the 150 mg dose. After 2 months of it I had trouble even looking at food and had to stay home unless I took immodium. My family said I changed and was very depressed although I didn’t notice it. I stopped it before Christmas because I wa…[Read more]
Jean replied to the topic Fatigued vs. Tired When Living with Pulmonary Fibrosis in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 3 months ago
I have both. I can recover with a small rest after dragging the bricks. But I also sleep long hours at night and it’s still hard to get up and get going in the am.
janis gorsline and Jean are now friends 3 years, 4 months ago
Jean replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 3 years, 6 months ago
My dr. has never discussed my degree of fibrosis with me. I was diagnosed 3 months ago. I suggested the Ofev since it is only 2 pills a day. I have been taking it for 6 weeks. I have IPF.
I have many side effects. The diarrhea is horrible. I have little appetite and things taste strange. I also have sweats and chills. This coupled…[Read more]
Jean became a registered member 3 years, 6 months ago