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Jean

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@jfrazier

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    Jean replied to the topic Side effects of OFEV in the forum Ofev (Nintedanib) 3 years, 2 months ago

    Hi

    I’m 84 years old and was diagnosed with IPF last April.  After finding funding for Ofev I started it at the 150 mg dose.  After 2 months of it I had trouble even looking at food and had to stay home unless I took  immodium.  My family said I changed and was very depressed although I didn’t notice it.  I stopped it before Christmas because I wa…[Read more]

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    Jean replied to the topic Fatigued vs. Tired When Living with Pulmonary Fibrosis in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 3 months ago

    I have both.  I can recover with a small rest after dragging the bricks. But I also sleep long hours at night and it’s still hard to get up and get going in the am.

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    janis gorsline and Profile picture of JeanJean are now friends 3 years, 4 months ago

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    Jean replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 3 years, 6 months ago

    My dr. has never discussed my degree of fibrosis with me.  I was diagnosed 3 months ago. I suggested the Ofev since it is only 2 pills a day.  I have been taking it for 6 weeks.  I have IPF.

    I have many side effects.  The diarrhea is horrible.  I have little appetite and things taste strange.  I also have sweats and chills.    This coupled…[Read more]

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    Jean became a registered member 3 years, 6 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years, 6 months ago

      Hello Jean, welcome to your pulmonary fibrosis forum.

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