@normbeat
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Norman Beattie replied to the topic Starting out with Esbriet in the forum Esbriet (Pirfenidone) 2 months ago
Garry glad to have you in the forum. Good questions.
I’m 70, diagnosed 6 years ago. Have used both OFEV and Esbriet and had the usual side effects. OFEV for a year and the diarrhea was too much so switched to Esbriet but the dizziness and feeling uncomfortable was too much so I went off both. Totally my choice but didn’t want to live with the sid…[Read more] -
Norman Beattie replied to the topic Optimum Esbriet dosage in the forum Esbriet (Pirfenidone) 3 months, 3 weeks ago
I have been in both with side effects on each. OFEV was the diarrhea which restricted your social life and outside activities. Changed doses and not much better. Switched to Espriet and 9 pills a day couldn’t sit in the sun to watch grandson soccer or in our living room with the sun shining. Dizziness, nose & eyes running, feeling poorly o…[Read more]
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Norman Beattie replied to the topic Optimum Esbriet dosage in the forum Esbriet (Pirfenidone) 3 months, 3 weeks ago
I have been in both with side effects on each. OFEV was the diarrhea which restricted your social life and outside activities. Changed doses and not much better. Switched to Espriet and 9 pills a day couldn’t sit in the sun to watch grandson soccer or in our living room with the sun shining. Dizziness, nose & eyes running, feeling poorly o…[Read more]
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Norman Beattie replied to the topic Vaccinated PF people and COVID 19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 3 months, 3 weeks ago
Good morning Canadian here and I have had all the shots which include 2 boosters. Went to Whistler with all the family caught covid 2 days after returning in early August. Miserable for several days. Started with sore throat and then fatigue, then stuffy nose and a couple days later chest congestion. Breathing became difficult, sleep almost…[Read more]
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Norman Beattie replied to the topic Vaccinated PF people and COVID 19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 4 months ago
Didn’t need to respond at the time as I hadn’t contacted Covid. Now I have and feel blessed that I had all 4 shots. Most definitely do not feel as good as before Covid. Less energy and shortness of breath now.
Norm -
Norman Beattie posted an update 4 months ago
Good morning all a beautiful day in BC today. I’ve just read the latest column from Charlene Marshall on how she has trouble being described as inspirational. Alas Charlene it is a cross you will have to bare. Most people that have inspired me have been placed in a situation outside of their control and they have reacted with strength, and d…[Read more]
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Norman Beattie replied to the topic Is My Disease Worsening? in the forum Living with Pulmonary Fibrosis: 50+ 6 months, 4 weeks ago
Charlene’s forum allows us to really describe how we feel without feeling guilty since everyone understands. So Virginia vent away, Randy get out to Washington, and Sharon thank you for striving through extreme health measures to dole out care to those who need it.
i read most of the submissions and wish you all well on the up hill battle caused b…[Read more] -
Norman Beattie replied to the topic Is My Disease Worsening? in the forum Living with Pulmonary Fibrosis: 50+ 6 months, 4 weeks ago
I have the same problem with second hand smoke of any kind cigarette, bbq, etc. Makes me come up short for breathing. Diagnosed in 2016 as well noticing a decline lately. Pulmonary test shows 16% less capacity from 6 months ago. Also on OFEV and diarrhea is difficult to live with.
Thanks for this blog Charlene.Norm Beattie
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Norman Beattie became a registered member 1 year, 4 months ago
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Welcome to the PF forums Norman!
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@normbeat , thank you so much for your kind words! This comment was a beautiful way to start my Saturday morning and I so appreciate hearing how much you’ve learned from these forums. Thank you kindly!
Much love,
Char