Rob

Dr David Schwartz at University of Colorado Medicine.

I’m not in a trial but Dr Schwartz has a group in Denver inhaling Acetylcysteine(NAC) and got my pulmonologist in Canada on board. I’ve been inhaling 8ml by nebulizer for 10 minutes twice a day for 2 years. My lung congestion is greatly improved and if that is an issue for you I would recommend it.

Stay well

Rob

Hi Charlene

No Tyvasco experience but I inhale liquid Acetylcysteine twice a day and take Esbriet. Noticeably less mucous and relatively stable.  🤞Recommended to me by Dr David Schwartz in Denver who is a top IPF expert.
Be well

Rob

Thanks for the replies. Looks like we got an appointment for Friday.  🤞

Thanks John.  Organ transplant is on the list and I’m just worried the doctor’s letter stating IPF is highest risk won’t get be enough.

I have IPF and have spent the last year at home. I just received my first AstraZeneca shot.  In the Ontario guidelines it says that people in the highest risk category and a caregiver can qualify for a vaccine in some areas. Of course IPF isn’t on the list but I have a doctor’s letter stating I’m at highest risk and my caregiver has a letter…[Read more]

Agreed my nasal congestion is especially bad this year.  Spraying up my nose with full stream saline spray(I use Hydrasense) helps me a lot.

Thanks to great support from all readers my wife’s book, The Jane Austen Society, has been at the top of the Toronto Star and Globe & Mail’s Canadian bestseller list for the last 2 weeks and #7 on the LA Times hardcover bestseller list. We’ve been able to support the Firestone Institute for Respiratory Health’s COVID Response Fund as a result.…[Read more]

P.S.

A portions of sales from the book are being donated to the Firestone Institute for Respiratory Health in Hamilton.

My wife and I opened a small bookstore in late 2015. Four months later I was diagnosed with IPF so at the end of 2016 we shut down the store to focus on bucket list trips and my health. After our Tuscany and my golf trip she went to visit Jane Austen’s(her fave author) home in Chawton, UK and that trip became the basis of her first published n…[Read more]

I take Zinc, Vit C, Vit D and Oregano Oil daily for immune boosting.  I wear a device called an Airtamer(bought on Amazon)  whenever I’m in public near other people.  It’s supposed to repel germs and I believe it works.  I always have an individually wrapped medical mask with me if I’m in a train, theatre…  I’ll put it on if people near me are…[Read more]

Hello Ruth

My mother had IPF and she believed NAC helped her.  I also have IPF and was told by a top researcher(Dr David Schwartz- just got a $10 million IPF research grant)that NAC in pill form shown little effect but recommended I inhale the liquid form(Acetycysteine or Mucomyst) by nebulizer.  I had a terrible persistent phlegmy cough that h…[Read more]

All good precautions.

We also turn the air vent on high.

I wear a device called an Airtamer A310(available on Amazon) when I’m on a plane , train, in a theatre or any crowded place.  I know people who fly frequently that swear by  it but who knows.

Stay well

Rob

Thanks David ( @davidaswain ).  I’m currently taking 240,000 but may try to bump up.  Do you always take it on an empty stomach?

Rob

I am taking Esbriet for IPF but had developed frequent and painful sinus congestion recently.  I started taking Serrapeptase(along with saline spray)to help that problem but I do believe my breathing has improved as well.  I’m normally a skeptic about supplements but would like to hear other IPF patients response to Serrapeptase.   Rob