Biography

Name

Rosemary Graham

Nickname

rosie

Current medication regimen

Oxygen, (Letairis for the PAH). Had also taken Uptravi for PAH

Best advice for PF symptom management

Since my diagnosis in 1984 and experiencing roller coaster symptoms and med side effects what has sustained me is my spiritual faith journey, good nutrition and smaller meals, getting proper sleep (I use a bipap for sleep apnea) and rest, and moving slowly/exercise when I can.  I learned to do tasks in stages.  Not getting upset when I’m in bed for most of a day.  Drinking teas that help with digestion and keep me calm.

Are you currently taking an anti-fibrotic medication?

no

How long have you or the person that you are caring for had PF?

ILD still 1984 and PF in 2008