• Pamela Green became a registered member 2 years, 7 months ago

    • Hello Pamela, welcome to the pulmonary fibrosis forum. Thank you for joining.

      • Thank you Mark, from what I have already seen on these forums, many of you are better informed than many primary care doctors.
        I look forward to joining in when appropriate and woodier if Cynthia would be kind enough to contact me.
        I too live in Rhode Island and Auto Immune disease has just been ruled out in my case. Maybe we can meet up sometime.I am 72

        • Thank you Pamela, the important thing to remember is each person will have different experiences with our disease. What works for one may not work for another. Thank you for commenting and please engage when you feel comfortable. Mark

          • Hello Mark, I have just replied to Cynthia but it has not been posted and am wondering what I did wrong. Does it take time to show up?
            Pamela

            • I am finding this the most interesting topic so far as I am only 1 week away from my final evaluation at Temple University for transplant.
              These O2 numbers are so difficult to control. All I can do is sit or lie down and wait as soon as I move from 92/93 resting I can drop to low 80’s high 70′ which is scary. When showering my partner has hooked me up to the large emergency tank to up my numbers for a few minutes.
              Do you remember going through this Mark before your transplant?. what else can we do?

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