@patriciadubose
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Patricia DuBose posted an update 1 month, 2 weeks ago
Well, today certainly ranks up there for being one of the worse days of my life. We arrived at Mayo-Jax at 8 AM, and after vitals were taken, we met with one of the tranplant doctors. He looked over and asked questions about Dave’s medical history and then told us how utterly hideous the surgical and post-transplant processes were and told Dave he…[Read more]
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Patricia DuBose posted a new activity comment 1 month, 2 weeks ago
Thanks Mark – I just need a good night’s sleep and I know I’ll feel better in the morning.
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Patricia DuBose posted an update 1 month, 2 weeks ago
Tomorrow begins the start of my husband’s evaluation for lung transplantation at the Mayo Clinic – Jacksonville. I’m incredibly nervous! The days start @ 8 AM and the last appointments are around 3 PM. Since the days are packed with appointments, I’m worried how’s going to get his oxygen and when/where he will eat. Fortunately, his sister, who has…[Read more]
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Hello Patricia, please don’t worry about the oxygen. There will be plenty of tanks available in the department you will be in. They will most likely disconnect your tank and they will use their tanks. Clinic personnel will check on the amount of oxygen is left in the tank and will replace as needed. You only have to make sure he has enough for t…[Read more]
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Thanks Mark – I just need a good night’s sleep and I know I’ll feel better in the morning.
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Patricia DuBose replied to the topic transplant evaluation criteria in the forum Pre/Post Lung Transplant 2 months ago
Thanks so much for your input, David. I actually have an update – so the process is moving along.
Mayo Clinic (Jacksonville) has scheduled an initial appointment for Feb. 14th. All I really know at this point is that at this initial appoinment we will get more information about the testing series David must undergo – that it is about two weeks in…[Read more]
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Patricia DuBose replied to the topic transplant evaluation criteria in the forum Pre/Post Lung Transplant 2 months ago
Thanks so much for the words of encouragement, Mark. I read your response to David and we appreciate the practical advice. David did recently complete a pulmonary rehab program, and while I can’t get him in the gym, he does walk in our home and works on an arm and leg peddler. I’m getting some weights to work on his arms as well. He is a model…[Read more]
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Patricia DuBose started the topic transplant evaluation criteria in the forum Pre/Post Lung Transplant 2 months ago
My husband has been referred for lung transplantation and we are waiting for the call to schedule his initial appointment. I’m getting very anxious because he seems to be declining so precipitously and there doesn’t seem to be anything that can be done about it. For example, he completed a 6 minute walk test 3 weeks ago – now he can barely walk…[Read more]
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Patricia DuBose joined the group
Research and Development 6 months, 2 weeks ago -
Patricia DuBose changed their profile picture 6 months, 2 weeks ago
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Patricia DuBose became a registered member 6 months, 2 weeks ago
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Hello Patricia, welcome and thank you for joining your pulmonary fibrosis forum.
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Hi @patriciadubose,
Oh my heart ached for you when I read this update! First of all, I’m not going to sugar-coat it: that doctor sounds like an asshole. While he may be knowledgeable about transplant, outcomes and likely successes, ultimately he could have demonstrated far more compassion and empathy for what you and Dave are enduring and having…[Read more]
Hello Patricia, I agree with everything Charlene wrote. I know of people who were denied at several centers but are currently living a wonderful life. Please take doctors advice and go to the transplant center he recommended. I mentor a potential lung transplant patient and at first he wasn’t a bonafide candidate but he has since improved his e…[Read more]