@patrick
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Craig Brennan replied to the topic Oxygen concentrators and travel in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months ago
Hi Charlene,
It has been some time for me since I actually commented on this site and I just read the above comments regarding traveling with a POC. I have been using an inogen POC since early August 2020 and I am on 3 lts continuously. My issue with this method is it very restrictive in terms of battery life, I am using the battery that was…[Read more]
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Craig Brennan's profile was updated 6 months, 2 weeks ago
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Craig Brennan posted an update 8 months ago
@pammckee Pam I was diagnosed with IPF 9 years ago this past February and only started oxygen June 2020 and am still ambulatory with oxygen. I still try to live a full life although the oxygen can be somewhat cumbersome I continue to survive. Please think positive and don’t give in as each day new things are discovered.
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Craig Brennan replied to the topic Ofev Users can Safely take Ofev on a Long Term Basis in the forum Ofev (Nintedanib) 9 months, 2 weeks ago
Thanks Mark and I meant to say I am a 72 year old male, although I think how I stated my age reflects how really older I am.
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Craig Brennan replied to the topic Ofev Users can Safely take Ofev on a Long Term Basis in the forum Ofev (Nintedanib) 10 months, 1 week ago
72 year old male living in Northern NY
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Craig Brennan replied to the topic Ofev Users can Safely take Ofev on a Long Term Basis in the forum Ofev (Nintedanib) 10 months, 1 week ago
Hi Mark I am a year old male living in Northern NY (I not worried about going to hell as I’M told I already live there) and I was diagnosed with IPF in February 2012. It was by chance they found it after my attending physician ordered a c-scan with contrast as they could see enlarged limp nodes surrounding the lungs . I was living a normal life…[Read more]
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Craig Brennan posted an update 1 year ago
Well I have now lived nearly 9 years with the knowledge of having IPF and I don’t have to tell any of you the adjustments I had to make to life in general. I first had to get my head on straight and then I tried to educate myself on the disease as best I could. For the first 8 years I had been virtually A symptomatic and I was going about life as…[Read more]
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Craig Brennan posted an update 2 years, 11 months ago
Hi Charlene
Regarding phlegm and IPF I too have a great deal of phlegm not so much during rest but daily sitting or active. I was diagnosed with IPF in January of 2012 and do not require supplemental oxygen to date. I did however radically alter my diet eating far more vegetables and illuminating carbs and bad sugars. I will soon turn 71 and am…[Read more]-
Hi Craig,
Thanks so much for the update and welcome again to the PF forums. Sorry to hear you deal with this unpleasant side effect of excessive phlegm as well. I just wrote to another member of the forum about this; it seems so many folks deal with this as a side effect of IPF, and yet the literature and doctors are often unaware that it exists.…[Read more]
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Craig Brennan posted a new activity comment 3 years, 3 months ago
You are welcome Charlene. I have a 65 year old female friend who was diagnosed with idiopathic pulmonary fibrosis before I was and last month one of her lungs collapsed due to a hole created from scaring. She has been in and out of the hospital for almost a month now and it still not fully healed. I guess this hit me rather hard as like me she…[Read more]
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Craig Brennan changed their profile picture 3 years, 3 months ago
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Welcome to the PF forums Craig. Thanks for joining us!
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You are welcome Charlene. I have a 65 year old female friend who was diagnosed with idiopathic pulmonary fibrosis before I was and last month one of her lungs collapsed due to a hole created from scaring. She has been in and out of the hospital for almost a month now and it still not fully healed. I guess this hit me rather hard as like me she…[Read more]
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Craig Brennan became a registered member 3 years, 3 months ago
