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Paulette Daniels

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@paulette-daniels

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    Paulette Daniels replied to the topic Digital Clubbing in Pulmonary Fibrosis Patients in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 10 months ago

    I don’t have clubbing in my fingers (I don’t think), but for years a couple of my nails have grown weird, turning down at the ends in the middle.  I have wondered if this is clubbing.  Also, I thought I had an ingrown toenail on my big toe, but its not.  It did hurt.  I suppose it could be clubbing.

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    Paulette Daniels replied to the topic Leg muscle weakness side effect of OFEV in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago

    I can hardly walk more than about 15 steps for the last 3 weeks.  Never thought it might be the OFEV.  I have only been on it for about 3 months.  Doctor as usual, has no idea and no suggestions to help

     

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    Paulette Daniels replied to the topic Has anyone stopped taking Esbriet? in the forum Esbriet (Pirfenidone) 2 years, 1 month ago

    I took Esbriet last year for several months. At first it was fine, but as the dosage increased, I had more and more side effects – passing out, vomiting, fatigue, nausea, headaches, rashes, loss of appetite and more. When I was at full dosage, I could no longer tolerate it. My pulmonologist kept giving me drugs to counteract the side effects.…[Read more]

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    Paulette Daniels became a registered member 2 years, 9 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 9 months ago

      Hello Paulette, we are delighted to have you as a member of the pf forum. Welcome!

  • Profile picture of Paulette Daniels

    Paulette Daniels's profile was updated 2 years, 9 months ago

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