Paulette Daniels replied to the topic Digital Clubbing in Pulmonary Fibrosis Patients in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 10 months ago
I don’t have clubbing in my fingers (I don’t think), but for years a couple of my nails have grown weird, turning down at the ends in the middle. I have wondered if this is clubbing. Also, I thought I had an ingrown toenail on my big toe, but its not. It did hurt. I suppose it could be clubbing.
Paulette Daniels replied to the topic Leg muscle weakness side effect of OFEV in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago
I can hardly walk more than about 15 steps for the last 3 weeks. Never thought it might be the OFEV. I have only been on it for about 3 months. Doctor as usual, has no idea and no suggestions to help
Paulette Daniels replied to the topic Has anyone stopped taking Esbriet? in the forum Esbriet (Pirfenidone) 2 years, 1 month ago
I took Esbriet last year for several months. At first it was fine, but as the dosage increased, I had more and more side effects – passing out, vomiting, fatigue, nausea, headaches, rashes, loss of appetite and more. When I was at full dosage, I could no longer tolerate it. My pulmonologist kept giving me drugs to counteract the side effects.…[Read more]
Paulette Daniels became a registered member 2 years, 9 months ago
Paulette Daniels's profile was updated 2 years, 9 months ago
Hello Paulette, we are delighted to have you as a member of the pf forum. Welcome!