Biography

Nickname

peter-garrison

Gender

Male

Location (Country/State)

Charleston sc

What best describes you?

Patient

Short Bio

I got covid in November of 2021. I spent 3 months in the hospital. I was initially diagnosed with ILD and IPF. My pulmonologist prescribed OFEV. I opted for a second opinion. I went to a pulmonologist who is a professor at a medical university. She said I do not have IPF, but covid related PF. I am in pulmonary rehab which I believe helps. I don’t know if covid PF gets better. I watched a very interesting interview of a doctor named Graham Lloyd Jones who explained covid PF.

 

 

 

I don’t believe the medical field really understands tHe full extent of covid PF. I am still researching and trying to learn more about what has happened to me because of covid. I am on 2l of O2 at rest and 3l when I exercise. I have a constant urge to cough, post nasal drip, runny nose, and phlegm. Some days are better than others. I usually sleep well through the night.

 

 

 

 

 

 

 

Type of Pulmonary Fibrosis?

PF of known aetiology

How long have you or the person that you are caring for had PF?

13 months

How did you find us?

Other

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