Biography

Name

CC

Nickname

pickupsticks

Year of Birth

1977

Gender

Female

Location

Oregon

Relationship

Family

Short Bio

Mom recently diagnosed with IPF. No idea if familial, but possibly – several other breathing & possibly related  issues that may run in the family, including a grandmother with COPD.

Type of Diagnosis

IPF

Treatment / Medical Facility

Mayo Clinic (Iowa)

Current medication regimen

Pending.

Lung transplantation status

to be determined

Supplemental Oxygen

no

Best advice for PF symptom management

Not my place. Following the lead of a friend who had cystic fibrosis, and letting mom decide how she wants to proceed on her own terms – which is try to stay zen, take things one day at a time. With her permission, I’ve been researching everything I can get my hands on ref. research on potential herbal/vitamin/traditional/medical/experimental remedies so she can discuss with her doctors.

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Other

How long have you or the person that you are caring for had PF?

Diagnosed 2 weeks ago, symptoms started 2 months ago – was concerned an episode of wheezing was related to an aortic heart valve replacement two years earlier. When heart looked OK, asked for chest x-ray – which led to lung CT and diagnosis

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