pickupsticks
Biography
Name | CC |
Nickname | pickupsticks |
Year of Birth | 1977 |
Gender | Female |
Location | Oregon |
Relationship | Family |
Short Bio | Mom recently diagnosed with IPF. No idea if familial, but possibly – several other breathing & possibly related issues that may run in the family, including a grandmother with COPD. |
Type of Diagnosis | IPF |
Treatment / Medical Facility | Mayo Clinic (Iowa) |
Current medication regimen | Pending. |
Lung transplantation status | to be determined |
Supplemental Oxygen | no |
Best advice for PF symptom management | Not my place. Following the lead of a friend who had cystic fibrosis, and letting mom decide how she wants to proceed on her own terms – which is try to stay zen, take things one day at a time. With her permission, I’ve been researching everything I can get my hands on ref. research on potential herbal/vitamin/traditional/medical/experimental remedies so she can discuss with her doctors. |
Are you currently taking an anti-fibrotic medication? | no |
How did you find us? | Other |
How long have you or the person that you are caring for had PF? | Diagnosed 2 weeks ago, symptoms started 2 months ago – was concerned an episode of wheezing was related to an aortic heart valve replacement two years earlier. When heart looked OK, asked for chest x-ray – which led to lung CT and diagnosis |
Privacy Policy and Terms of Use | I agree |