Ping Xu

Linda,

Thank you so much for sharing your experience. I am so happy to know that you have been stable for more than 5 years. I have heard from many posts that National Jewish is a wonderful center for lung fibrosis. Unfortunately it is too far away from where I live. Do you mind sharing how your silent reflux was diagnosed? My local…[Read more]

Hi, Jeff, thank you for sharing your experience with Ofev. I am so happy that you are not experiencing any side effects and hope that it continues this way. I was diagnosed at about the same time as you and we are both from Indiana! It is very nice to see someone on the forum that is close!

Charlene, first of all, I want to thank you for being a wonderful moderator of the forum. You are so kind and helpful to others. Of the ones that you listed here, my most fear is the financial implication of the disease. I am 44 years old so I don’t have Medicare. If I don’t work, I will lose insurance and no way to pay for the expenses. But this…[Read more]

Craig, Ken, Ben, and Linda,

Thank you so much for replying me and sharing your experiences. These have been really helpful. I am sorry that I have been slow in responding. The diagnosis of IPF really struck me as a huge shock and I feel bad that I have been trying not to avoid thinking about it.

I had already made my visit to Cleveland Clinic…[Read more]