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Ping Xu replied to the topic 2nd opinion at Cleveland Clinic in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 9 months ago
Linda,
Thank you so much for sharing your experience. I am so happy to know that you have been stable for more than 5 years. I have heard from many posts that National Jewish is a wonderful center for lung fibrosis. Unfortunately it is too far away from where I live. Do you mind sharing how your silent reflux was diagnosed? My local…[Read more]
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Ping Xu replied to the topic Passing along what is working for me. in the forum Ofev (Nintedanib) 1 year, 9 months ago
Hi, Jeff, thank you for sharing your experience with Ofev. I am so happy that you are not experiencing any side effects and hope that it continues this way. I was diagnosed at about the same time as you and we are both from Indiana! It is very nice to see someone on the forum that is close!
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Ping Xu replied to the topic 5 Fears About Unemployment for Pulmonary Fibrosis Patients in the forum Employment & Pulmonary Fibrosis 1 year, 9 months ago
Charlene, first of all, I want to thank you for being a wonderful moderator of the forum. You are so kind and helpful to others. Of the ones that you listed here, my most fear is the financial implication of the disease. I am 44 years old so I don’t have Medicare. If I don’t work, I will lose insurance and no way to pay for the expenses. But this…[Read more]
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Ping Xu replied to the topic 2nd opinion at Cleveland Clinic in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 9 months ago
Craig, Ken, Ben, and Linda,
Thank you so much for replying me and sharing your experiences. These have been really helpful. I am sorry that I have been slow in responding. The diagnosis of IPF really struck me as a huge shock and I feel bad that I have been trying not to avoid thinking about it.
I had already made my visit to Cleveland Clinic…[Read more]
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Ping Xu started the topic 2nd opinion at Cleveland Clinic in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 10 months ago
I am new to the PF forum. I was diagnosed with IPF by the pulmonologist at the COE locally in June and thought of getting a second opinion at Cleveland Clinic. I requested an appointment from the Cleveland Clinic website a month ago before my local COE pulmonologist did any test. I just received a phone call that scheduled me to see a doctor at…[Read more]
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Ping Xu posted a new activity comment 1 year, 10 months ago
Thank you, Christie. I am happy that I found the PF forum.
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Ping Xu became a registered member 1 year, 10 months ago
Welcome to the PF forums Ping, thanks for joining us!
Thank you, Christie. I am happy that I found the PF forum.