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Patti

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@plstuard

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    Patti replied to the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 11 months, 1 week ago

    Such excellent advice! Thank you so much

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    Patti replied to the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 11 months, 2 weeks ago

    Thank you for your input! This makes so much sense to me. And explains why her machine stops pulsing sometimes when she naps in her chair:)

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    Patti replied to the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 11 months, 2 weeks ago

    I didn’t know that your breath had to be strong enough to trigger the pulse, but that makes sense! I worry about having her machines on pulse – that’s something I’ll definitely start noticing.
    and I’ll definitely look into the JY101s!

    thanks!!

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    Patti replied to the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 11 months, 2 weeks ago

    Yes, I know! I was very surprised to find out how much the portables are. And the battery cost hadn’t occurred to me.
    Between IPF and dementia my mom doesn’t get out a lot. I can’t imagine having to travel a lot with a machine to deal with.
    thanks for your advice!!

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    Patti replied to the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 11 months, 2 weeks ago

    Sounds like great advice, Doug! I’ll look into Everflo. She’s at 3lpm now, but I feel like they are going to increase it at her visit this week.
    Thanks for your wisdom! And I wish you the best:)

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    Patti replied to the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 11 months, 2 weeks ago

    Thanks, Kris!
    The type that has to be plugged in is exactly what I need. It’s portable enough to take with her if she spends a night or two away from home. The liquid oxygen tanks are super heavy so you really can’t move them at all.
    She has a small rechargeable portable that she can pull behind her but it acts up sometimes so I don’t depend on it…[Read more]

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    Patti started the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 11 months, 2 weeks ago

    Hello, everyone!
    My mom has IPF. She was diagnosed 3 1/2 years ago. She is on 3 liters of oxygen while active and at night. She had an exacerbation a couple of months ago and seems to need her oxygen more often. We are heading to a pulmonologist appointment this week – they may increase her intake again. We currently  rent a liquid oxygen tank…[Read more]

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    Patti replied to the topic Portable oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 5 months ago

    I wanted to thank everyone for your generous responses. Especially you, Charlene! You responses are always so thoughtful. This forum is such a wonderful resource!

    We are going this week, as suggested by someone, to a local supplier. She is currently using 2l while sleeping and while active. She currently doesn’t need it when she’s at rest. She…[Read more]

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    Patti replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 4 years, 7 months ago

    My mother just started taking it about two months ago. She was diagnosed a year ago, but we suspect she’s had it longer. Luckily her IPF is progressing very very slowly. Her doctor prescribed it to slow the progression even further. He suggested Ofev over esbriet simply because it was one less pill to remember to take – he said esbriet is 3 a d…[Read more]

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    Patti replied to the topic Portable oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 7 months ago

    Thanks for all this info, Charlene! This is great. We are still new to all this, so this is very helpful.

    My mom requires 2 liters, at least I think that the right term.

    Can’t wait to hear opinions from anyone else! On brands they like, didn’t like, etc!

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    Patti started the topic Portable oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 7 months ago

    Good Morning!

    This is my first ever post, so hello to all of you! My name is Patti.

    My mother was diagnosed with IPF about a year ago. She has been on oxygen therapy for about 8 mos. She uses liquid oxygen  -a large tank I call “the mothership” sits in our home, and she has a small portable Helios unit she uses when out and about.

    The prob…[Read more]

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    Patti became a registered member 4 years, 12 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years, 12 months ago

      Hi Patti, welcome to the PF forums. Thank you for joining us!

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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