Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Patti

Home Members Patti
show less show more
Profile picture of Patti

@plstuard

  • Activity
  • Profile
  • Friends 0
  • Groups 1
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Patti

    Patti replied to the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 months, 3 weeks ago

    Such excellent advice! Thank you so much

  • Profile picture of Patti

    Patti replied to the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 months ago

    Thank you for your input! This makes so much sense to me. And explains why her machine stops pulsing sometimes when she naps in her chair:)

  • Profile picture of Patti

    Patti replied to the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 months ago

    I didn’t know that your breath had to be strong enough to trigger the pulse, but that makes sense! I worry about having her machines on pulse – that’s something I’ll definitely start noticing.
    and I’ll definitely look into the JY101s!

    thanks!!

  • Profile picture of Patti

    Patti replied to the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 months ago

    Yes, I know! I was very surprised to find out how much the portables are. And the battery cost hadn’t occurred to me.
    Between IPF and dementia my mom doesn’t get out a lot. I can’t imagine having to travel a lot with a machine to deal with.
    thanks for your advice!!

  • Profile picture of Patti

    Patti replied to the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 months ago

    Sounds like great advice, Doug! I’ll look into Everflo. She’s at 3lpm now, but I feel like they are going to increase it at her visit this week.
    Thanks for your wisdom! And I wish you the best:)

  • Profile picture of Patti

    Patti replied to the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 months ago

    Thanks, Kris!
    The type that has to be plugged in is exactly what I need. It’s portable enough to take with her if she spends a night or two away from home. The liquid oxygen tanks are super heavy so you really can’t move them at all.
    She has a small rechargeable portable that she can pull behind her but it acts up sometimes so I don’t depend on it…[Read more]

  • Profile picture of Patti

    Patti started the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 months, 1 week ago

    Hello, everyone!
    My mom has IPF. She was diagnosed 3 1/2 years ago. She is on 3 liters of oxygen while active and at night. She had an exacerbation a couple of months ago and seems to need her oxygen more often. We are heading to a pulmonologist appointment this week – they may increase her intake again. We currently  rent a liquid oxygen tank…[Read more]

  • Profile picture of Patti

    Patti replied to the topic Portable oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 10 months ago

    I wanted to thank everyone for your generous responses. Especially you, Charlene! You responses are always so thoughtful. This forum is such a wonderful resource!

    We are going this week, as suggested by someone, to a local supplier. She is currently using 2l while sleeping and while active. She currently doesn’t need it when she’s at rest. She…[Read more]

  • Profile picture of Patti

    Patti replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 3 years, 11 months ago

    My mother just started taking it about two months ago. She was diagnosed a year ago, but we suspect she’s had it longer. Luckily her IPF is progressing very very slowly. Her doctor prescribed it to slow the progression even further. He suggested Ofev over esbriet simply because it was one less pill to remember to take – he said esbriet is 3 a d…[Read more]

  • Profile picture of Patti

    Patti replied to the topic Portable oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 12 months ago

    Thanks for all this info, Charlene! This is great. We are still new to all this, so this is very helpful.

    My mom requires 2 liters, at least I think that the right term.

    Can’t wait to hear opinions from anyone else! On brands they like, didn’t like, etc!

  • Profile picture of Patti

    Patti started the topic Portable oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 12 months ago

    Good Morning!

    This is my first ever post, so hello to all of you! My name is Patti.

    My mother was diagnosed with IPF about a year ago. She has been on oxygen therapy for about 8 mos. She uses liquid oxygen  -a large tank I call “the mothership” sits in our home, and she has a small portable Helios unit she uses when out and about.

    The prob…[Read more]

  • Profile picture of Patti

    Patti became a registered member 4 years, 4 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years, 4 months ago

      Hi Patti, welcome to the PF forums. Thank you for joining us!

Profile Photo Jim-Margie Huls Profile Photo Judy Suleta

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • Toolkit for the Newly Diagnosed by Christie Patient
  • Sam’s Tips for Traveling with O2 by Christie Patient
  • Hyperbaric oxygen therapy by Natalie Mondor
  • Stem cell treatment experiences by John M
  • Rolling cart by Jacqui

Recent Replies

  • When You Don’t Want to Talk About PF Appointments
  • When You Don’t Want to Talk About PF Appointments
  • Stem cell treatment experiences
  • Toolkit for the Newly Diagnosed
  • Stem cell treatment experiences

Members

Newest | Active | Popular
  • Profile picture of Brenda
    Brenda
    Active 5 hours, 54 minutes ago
  • Profile picture of Margaret
    Margaret
    Active 6 hours, 9 minutes ago
  • Profile picture of Jeannie
    Jeannie
    Active 10 hours, 13 minutes ago
  • Profile picture of Mohamed
    Mohamed
    Active 11 hours, 1 minute ago
  • Profile picture of Bob H
    Bob H
    Active 12 hours, 49 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies


Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2022 All rights reserved.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?
Verify you are not a robot

Forgot your details?

I remember my details

Create Account

Verify you are not a robot