Randy Busch replied to the topic Self-care: What’s Your “Happy Place” in the forum Join the Discussion: Welcome to all PF/IPF Patients 9 months ago
Just came back from 5 days fishing in Canada with 2 of my sons and some family friends, ate lots of fresh walleye and had a great time with my boys! That is my happy place and I plan on doing that every year till my PF prevents me! So far I feel I am luckier than most, it’s been 3 years since I was diagnosed and can still do most everything I w…[Read more]
Randy Busch replied to the topic Possible Cause of IPF – Ammonia ingestion and Statin?? Progressive? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 1 month ago
Hi I was diagnosed with PF about 2 1/2 years ago and no known cause so I assume it is IPF. I was prescriped 1,000 mg of CellCept twice a day to slow the progression and so far it seems to be working. I have no side effects from it at all. I am tired all th e time and get short of breathe doing very little, but outside if that I am doing fine.
Randy Busch replied to the topic Patient Experiences with COVID-19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 6 months ago
Hi Ben, I am new to this forum, I was diagnosed with PF about 2.5 yrs ago and I am also on CellCept. I got COVID on December 12 and was given the Moneclonal Antibody Infusion the next day. Had severe sypmtoms for about 2 weeks, body ache, chills, headaches, fever and lost smell which it is finally coming back slowly the last month. I am now fully…[Read more]
Randy Busch became a registered member 1 year, 6 months ago
Thanks for joining the PF forums Randy. Welcome!