Biography

I am from Hungary, my family still lives there, but I have been residing in France for 7 years.

My brother was dignosed with PF 4 months after a successful bone marrow transplant in 2001. The doctors said the development of his PF is due to the one chemotherapy that he received days before receiving the new stem cells from his donor, this one chemotherapy that was to completely eliminate all his white blood cells.

In the past 18 years he had some ups and many downs, in the first 10 years living with this disease his lung tissue tore easily so he had several times holes that the doctors needed to “weld”. This caused heart complications, which makes a potential lung transplant in the future even riskier.

The reason for me registering is that I would like to know more about this disease, and above all read about how other people live wiry this disease hoping that I find some tips about how to make his life more bearable.

We are very close, there is only 18 months age difference between us; we always had each other’s back. So I would like to do that here too. He doesn’t speak any other languages but Hungarian, and so far I couldn’t find a comprehensive site like this for patients with PF in Hungarian.

My goal is to forward as much information to him as possible. As well as providing him emotional support by telling/translating stories shared here, so that he feels a little less lonely in this world.