Forum Replies Created

  • Chris Montgomery

    Member
    May 18, 2022 at 10:24 am in reply to: IPF stages

    Wendy, yes I have hospice and they check on me regularly even offering a bath which my wife has rejected. Lol. I do have days where I see a brighter side and my sense of humor seems to help a little. I spend time outside and can’t help but feel disappointed on how little I can do. I’ve lost my appetite now which was one of the last things I enjoyed. This is a horrible disease that takes your dignity little at a time but this slow process of dying is killing me. It is good to have someone to discuss my inter feelings with. Thanks to the forum
    Chris

  • Chris Montgomery

    Member
    May 18, 2022 at 10:24 am in reply to: IPF stages

    Wendy, yes I have hospice and they check on me regularly even offering a bath which my wife has rejected. Lol. I do have days where I see a brighter side and my sense of humor seems to help a little. I spend time outside and can’t help but feel disappointed on how little I can do. I’ve lost my appetite now which was one of the last things I enjoyed. This is a horrible disease that takes your dignity little at a time but this slow process of dying is killing me. It is good to have someone to discuss my inter feelings with. Thanks to the forum
    Chris

  • Chris Montgomery

    Member
    May 17, 2022 at 8:09 pm in reply to: IPF stages

    I am in a similar situation with approx 10 lph of O2 and at 73 I was very active and now I get out of bed and to the sofa and that’s about all I can manage. Iam not bed ridden yet but pretty close. My problem is quality of life. I feel as Iam holding up the inevitable and I realize it doesn’t get better from here so what’s the point. I feel fortunate that God has given me the opportunity to get my affairs in order and as of now Iam all packed and ready to go, just waiting for the train. Not to be negative but Iam not having fun and hate to see my loved ones have to worry about me and to my friends it’s like saying goodby over and over. I wish there was another way but I don’t see one. If anyone has any advice on how to encourage positivity I would love to hear.
    Chris M