Reshma Joshi

Hi @charlene!

It’s always a good feeling talking to you and sharing my mom’s condition. We’ll continue to make her do some exercise along with some rest. I’ll keep you updated about her condition. Thank you for being there for us through this Forum 🙏

Take care and be safe from Corona ❤️

Lots of love, Reshma

Hello @Mark:

This is the drawback of living in developing countries like Nepal where there’s no such rehabilitation for the patients. Doctors here just prescribe the medicine and that’s it. We ourselves are doing research and watching YouTube videos for the good exercises for IPF patients. There’s a big difference in medical treatment in…[Read more]

Hello @Charlene!

I know it’s very tough situation for my Mom and a tough decision for us to make about her exercise and all. Now we have decided to do like this, we see her condition during the day and if she’s fine we’ll make her to some activities and if she’s exhausted we’ll make her rest. Let’s see the progress in coming days and I’ll keep…[Read more]

Hello @Mark!
<p style=”text-align: left;”>Thank you so much for making me understand. I’ll ask her doctor next time if we can switch to Ofev next time and it’s consequences on her case.</p>
<p style=”text-align: left;”>Also I want to ask since my mom is taking oxygen supplement 24/7 and we’re making her walk for few minutes every day but some d…[Read more]

Hi @Mark!

Hope you’re doing well. I wanted to ask something about the medicine. My mom was taking Pirfenex 200 mg 2 tablets 3 times a day but since last month doctor has increased the medicine intake so now she’s taking 3 tablets at a time which is total 9 tablets a day. The medicine also we need to order from India since we live in Nepal. And we…[Read more]

Hi @Charlene!

My mom is taking oxygen supplement 24/7 these days and we’re making her walk for few minutes every day but some days it’s very difficult to walk even with oxygen, she started to cough a lot so we’re very confused whether we should make her walk in such condition? At the same time we’re afraid she might not be able to do her daily…[Read more]

@charlene

Hi Charlene,

We’re now giving her oxygen almost all the time. We bought an electric Oxy-Med which is working fine and the doctor has increased the no.of medicine that she needs to take everyday. Now she’s precribed to take 3 Prifinex 3 times a day. Hope her condition improves in coming days. Thank you so much for your information. We…[Read more]

@richard

Thank you so much for your valuable information. We’ll definitely adjust our situation based on your information 🙏

Thank you @charlene for the information. My mom is now taking oxygen at home but as soon as we take out the oxygen her saturation drops. So is it okay to give her oxygen all the time? Also even if she walks and do some light activities inside the house she gets very exhausted and her shortness of breath increases. But the doctor has advised to…[Read more]

Hello

I see that Gebapentin has worked for many patients but is it available everywhere in the world? We’re from Nepal and my mom has been suffering from chronic cough a lot these days. Her oxygen level is dropping and we’re giving her oxygen at home. So if anyone can plz tell me the availability of this medicine and also what’s the average level…[Read more]

Thank you so much @charlene for the information. I’ll surely do the research on this forum.

<p style=”text-align: left;”>Thank you for the info @jaime L manriquez. Are Flamex and codeine different medicines? And do we need prescription from the doctor for these medicines?</p>

Hello, I want to know what can an IPF patient do to get rid of coughing? Or at least minimize it? My mom has been taking medicines like Emsolone, Lucast and Lormeg but they are not helping her. Can anyone please suggest anything? Any kind of advice would be a great help.

Hello Charlene..

As you said higher CO2 level is dangerous for the patients with lung disease and they should avoid such foods. Can you please give us some examples of food with high CO2 that the patients should avoid? Thank you.