Reshma Joshi

Thank you dear @susan. I will definitely decrease the amount of salt in my mom’s meal.

Stay safe and take care

Reshma

Hello!

My mom now has a complete loss of appetite since few weeks. She says she feels full all the time and doesn’t want to eat. She feels bloated all the time and whenever she eats she has pain in the upper stomach. We have talked to her doctor and they recommended medicine for Gastric twice a day but it doesn’t seem to help her. Can anyone…[Read more]

Hi @susan

Thank you for the info.

Take care. Sending you a warm hug.

Reshma

Hello!

My mom has swollen feet since few days. Is it a normal side effects from steroids or is there anything to worry about? Does anyone have such experience with swelling?

Best regards

Reshma

Hi @susan

It’s nice to hear that your daughter is visiting you frequently. It is very very important to have good times with your family. After all family is everything ❤️🙏

Warm regards always,

Reshma

<p style=”text-align: left;”>Hi @charlene</p>
Good to know about your experience with humidifier and vicks vapor rub. I’ll try to contact my mom’s physician about humidifier and whether it may help or not. Thank you.

Warm regards,

Reshma

Hi @susan

Thank you for your reply. It’s getting harder for my mom because of too much cough esp during night and morning time. Oxygen concentrator doesn’t help her anymore so we have 3 big oxygen cylinders and 2 small. She needs 6-7 Lpm while sitting and up to 12-15 Lpm when she goes to bathroom. She’s not been able to brush her teeth lately…[Read more]

Hello!

I have a question does humidifier help to reduce cough to some extent? My mom’s coughing has increased a lot lately so someone suggested me to put a humidifier in her room, may be this will decrease some coughs. Can anyone suggest me if it’s a good idea?

Best regards

Reshma Joshi

Hello @susan

Nice to hear from you and happy that you’re daughter is coming to visit you. I have came to Nepal last week for my mother. I’m taking full care of my mother which I couldn’t do before. My sister who is a caregiver can relax a bit now since I’m here for the family. Have a good time with your daughter and enjoy your time.

Warm wishes

Reshma

<p style=”text-align: left;”>Hello @susan, @charlene</p>
My mom got hospitalized again today. This is the second time she got hospitalized in 2 months. She was not getting enough oxygen since yesterday so we had to take her to hospital. Fingers crossed 🤞

Susan, you wrote about doubling up the concentrator. What does that mean? How does it work?…[Read more]

Hi @susan and @charlene
<p style=”text-align: left;”>Thank you both for sharing your experience. About the oxygen concentrator, we’re only using stationery home concentrator which has the highest level of 5LPM. So I was wondering if there are other better stationery concentrator with higher level (higher than 5LPM) ? Also she’s wearing an oxygen…[Read more]

Hello everyone!

My mother has been using O2 supplement 24/7 from last 8 months and then we bought a Oxygen concentrator called Oxy-Med, Model MAOXY 05 and we have 2 small cylinders for back up. Previously the amount of oxygen flow was enough from the concentrator through nasal cannula but these days (after almost 8 months of using) she’s not…[Read more]

Hello @Randy and @Susan

Thank you for sharing your every day struggle with low oxygen level and heart racing problem. My mom has IPF and she has this heart racing like “asthma” quite often. Sometimes even while seating her heart is pounding and her breathing becomes very heavy like having asthma. Do you guys have any solution or recommendation…[Read more]

Okay got it. Thank you @susan ❤️

Hi @susan

The things you suggested are household things which we can find easily around us. We’ll definitely try it for our mom. Thank you so much for the great tips 🙏

Warm regards,

Reshma

Hi @steve

I will check what we can do. Thank you for your advice and concern 🙏

Warm wishes,

Reshma

Hi @steve

Thank you so much for your advices and for all the information. My mom lives in Nepal and they have very limited resources and medications for the IPF patients. It’s not like US or Canada where they have pulmonary rehabs and lot of options for medications. My mom has her follow up in a week so I’ll them to talk about the medicine that…[Read more]

<p style=”text-align: left;”>Hello @wendy</p>
I appreciate all the advices that I get from this forum. We try everything possible to help our mom. So thank you very much for your advice 🙏

Warm regards,

Reshma

<p style=”text-align: left;”>Hello everyone!</p>
Thank you so much for your suggestions. It seems like the wedge pillow is very helpful but sadly they don’t have such pillows in Nepal. If we didn’t find such pillow I’ll try to courier it from here (Sweden).

Also have you guys experienced making a different kind of sound while sleeping? My mom…[Read more]