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Rose Miller

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@retrorose

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    Rose Miller replied to the topic Has Pulmonary Fibrosis Changed Your Appetite? in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 10 months ago

    I am glad we are on this topic.  I am into my 3rd year with IPF and am on OFEV.  Just recently I’ve been experiencing a lessened appetite and taste differences.  Also, if I eat too much, it does affect my breathing, probably to the diaphram pressing up againt the lungs.  Yesterday, I went to a luncheon and ate a little too much, I noticed a ris…[Read more]

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    Rose Miller changed their profile picture 4 years, 10 months ago

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    Rose Miller replied to the topic Hair thinning: a side effect of Ofev? in the forum Ofev (Nintedanib) 4 years, 10 months ago

    Hi Charlene, I just joined the forum and would like to comment regarding hair thinning.  I was diagnosed with IPF Oct. of 2015 and started OFEV on 2/2016 and have been on it ever since.  I have noticed hair thinning over the past few years, but it seems to run in our family on my mother’s side, so I’m not sure what’s causing it.  No one in my fa…[Read more]

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    Rose Miller became a registered member 4 years, 10 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years, 10 months ago

      Hi Rose, welcome to the PF forums. Thanks for joining us!

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