Rose Miller

I am glad we are on this topic.  I am into my 3rd year with IPF and am on OFEV.  Just recently I’ve been experiencing a lessened appetite and taste differences.  Also, if I eat too much, it does affect my breathing, probably to the diaphram pressing up againt the lungs.  Yesterday, I went to a luncheon and ate a little too much, I noticed a ris…[Read more]

Hi Charlene, I just joined the forum and would like to comment regarding hair thinning.  I was diagnosed with IPF Oct. of 2015 and started OFEV on 2/2016 and have been on it ever since.  I have noticed hair thinning over the past few years, but it seems to run in our family on my mother’s side, so I’m not sure what’s causing it.  No one in my fa…[Read more]