Biography

Name

Linda

Nickname

Rivers

Last Name

Hogan

Year of Birth

1947

Gender

Female

Location

Denver region

Relationship

Patient

Short Bio

Bio: I am 77, still working at home part time, am not on any meds except for chronic pain syndrome. I live in Sr. Independent Living, and have no idea what this IPf is or if it is always progressing. I also live with two cats and would like to continue to be here for them. I am still a working writer and have finished four projects in the last six years, but fatigue has slowed me down greatly.  Soms rs I have been sleeping more than ever during the daytime and still at night.

I am often overwhelmed by everything that has happened since the night I went to the ER for what I thought was a blocked small intestine and came out with a lung disease.

I don’t have a caretaker or a group or team to offer help for this disease, but this seems like the closest I have found. My brother lives in the same state (CO.) but at a higher altitude. I have a granddaughter who lives in Denver and I haven’t told her I am having this illness. It took us years to find one another and I don’t yet feel comfortable enough.

I know very little about PF. But trying to learn.

Type of Diagnosis

IPF

Treatment / Medical Facility

St A hospital, Denver

Current medication regimen

(Just had 2nd scan). Don't feel I am getting much care. My doctor saw me 1 1/2 times, then retired, leaving me in hands of NP.

Supplemental Oxygen

yes

Best advice for PF symptom management

Not in a position to advise, but I would have thought it was to learn all I can. Still, only on I-net can I learn.

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

Unknown, but discovered 1 yr ago.

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