Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

RJ

Home Members RJ
show less show more
Profile picture of RJ

@rjday

  • Activity
  • Profile
  • Friends 0
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of RJ

    RJ replied to the topic Is home Air Purification recommended for IPF patients? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago

    I forgot to mention I was on Oxygen for 4 months before surgery and the purifiers were by me …on 24/7

    .

  • Profile picture of RJ

    RJ replied to the topic Is home Air Purification recommended for IPF patients? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago

    I looked into it over 2 years ago, but ended up getting several Dyson air purifiers instead,  one for each room, that have worked really well. Had my lung transplant 5 months ago and am still using them regularly. Very happy with them.

     

  • Profile picture of RJ

    RJ replied to the topic Tremors as a Side Effect of Transplant Meds in the forum Pre/Post Lung Transplant 1 year, 9 months ago

    It is so helpful to hear of how each of you has dealt with life post transplant.

    David, I feel exactly like you, terrified to be out in the sun, in the garden or pick up anything more than 10 lbs, even my grandbaby! This is the new reality of my life and I am hoping after a year or two things will get better. However, my voice is not improving…[Read more]

  • Profile picture of RJ

    RJ replied to the topic Tremors as a Side Effect of Transplant Meds in the forum Pre/Post Lung Transplant 1 year, 10 months ago

    Thank you Mark and Eileen for sharing your experiences.

    I had my single lung transplant the end of May and was dismayed by the tremors in both hands as well as the loss of my voice. Has anyone else experienced problems with their vocal chords? If so, what did you do?? I am also experiencing foggy memory. These side effects are very alarming.

  • Profile picture of RJ

    RJ replied to the topic Book Club in the forum Hobbies & Projects 3 years, 1 month ago

    Katie, love your suggestion of sharing book titles. “When Breath becomes Air” is a favorite along with “Chasing daylight” by Eugene O’Kelly. While dealing with end of life, and poignant, they put things in perspective. If you have not kept up with it, Kalanithi’s wife has remarried — to someone who lost his young wife tragically.

    Another author…[Read more]

  • Profile picture of RJ

    RJ became a registered member 3 years, 2 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years, 2 months ago

      Welcome RJ to your pulmonary fibrosis forum. Thank you for joining.

Profile Photo Helen B Profile Photo Jeff Richardson

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

Profile picture of Pete Besio
Profile picture of Elle

Newest Topics

  • OFEV and Surgery by Don Moffett
  • Zinc in the Role of Lung Fibrosis by Charlene Marshall
  • Positive Impacts of a Rare Diagnosis by Christie Patient
  • Qualities of a Supportive Caregiver by Charlene Marshall
  • Rare Disease Patients: We’re in This Together by Christie Patient

Recent Replies

  • The Harsh Realities of Lung Transplantation
  • The Harsh Realities of Lung Transplantation
  • Zinc in the Role of Lung Fibrosis
  • Zinc in the Role of Lung Fibrosis
  • Zinc in the Role of Lung Fibrosis

Members

Newest | Active | Popular
  • Profile picture of Pete Besio
    Pete Besio
    Active 4 minutes ago
  • Profile picture of Elle
    Elle
    Active 7 minutes ago
  • Profile picture of U. Samarakoon
    U. Samarakoon
    Active 44 minutes ago
  • Profile picture of Edith
    Edith
    Active 1 hour, 16 minutes ago
  • Profile picture of Nicki Conway
    Nicki Conway
    Active 1 hour, 21 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies


Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2022 All rights reserved.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?

Forgot your details?

I remember my details

Create Account