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RJ

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@rjday

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    RJ replied to the topic Is home Air Purification recommended for IPF patients? in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 4 months ago

    I forgot to mention I was on Oxygen for 4 months before surgery and the purifiers were by me …on 24/7

    .

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    RJ replied to the topic Is home Air Purification recommended for IPF patients? in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 4 months ago

    I looked into it over 2 years ago, but ended up getting several Dyson air purifiers instead,  one for each room, that have worked really well. Had my lung transplant 5 months ago and am still using them regularly. Very happy with them.

     

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    RJ replied to the topic Tremors as a Side Effect of Transplant Meds in the forum Pre/Post Lung Transplant 2 years, 6 months ago

    It is so helpful to hear of how each of you has dealt with life post transplant.

    David, I feel exactly like you, terrified to be out in the sun, in the garden or pick up anything more than 10 lbs, even my grandbaby! This is the new reality of my life and I am hoping after a year or two things will get better. However, my voice is not improving…[Read more]

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    RJ replied to the topic Tremors as a Side Effect of Transplant Meds in the forum Pre/Post Lung Transplant 2 years, 7 months ago

    Thank you Mark and Eileen for sharing your experiences.

    I had my single lung transplant the end of May and was dismayed by the tremors in both hands as well as the loss of my voice. Has anyone else experienced problems with their vocal chords? If so, what did you do?? I am also experiencing foggy memory. These side effects are very alarming.

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    RJ replied to the topic Book Club in the forum Hobbies & Projects 3 years, 10 months ago

    Katie, love your suggestion of sharing book titles. “When Breath becomes Air” is a favorite along with “Chasing daylight” by Eugene O’Kelly. While dealing with end of life, and poignant, they put things in perspective. If you have not kept up with it, Kalanithi’s wife has remarried — to someone who lost his young wife tragically.

    Another author…[Read more]

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    RJ became a registered member 4 years ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 4 years ago

      Welcome RJ to your pulmonary fibrosis forum. Thank you for joining.

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