Biography

Name

Robert
Nickname

Roberto
Last Name

Bienkowski
Year of Birth

1944
Gender

Male
Location

Central Michigan
Relationship

Patient
Short Bio

Retired research administrator. Diagnosed with IPF in late 2023 by local pulmonologist; confirmed a Univ Michigan.  Did the pulmonary rehab program at our local hospital. Started PIRF 3 months ago.
Type of Diagnosis

IPF
Current medication regimen

Pirfenidone
Lung transplantation status

to be determined
Supplemental Oxygen

yes
Best advice for PF symptom management

Be active, stay positive, keep reading about experiences of others
Are you currently taking an anti-fibrotic medication?

yes
If yes, which anti-fibrotic medication are you on?

Esbriet
How did you find us?

Facebook
How long have you or the person that you are caring for had PF?

Probably 2 years, but diagnosed in late 2023
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