Biography

Name

Robin

Nickname

Robinski

Last Name

Thompson

Year of Birth

1973

Gender

Female

Location

Titusville, PA; United States

Relationship

Family

Short Bio

Hello. I’m the daughter of a wonderful man that just recently, (Dec. 13, 2024),  passed away & had IPF. He was 75, almost 76 when he passed. I have been having a very hard time living life without him. Just the other day it came to me, “Instead of sitting around, staring at the wall, crying & being completely miserable all the time from missing my Dad, why don’t I get involved in things to keep my Dad’s memory alive & do things that would make him so proud of me.” So, that’s what I’m doing.
* I love you Dad & I miss you so very much. I will see you again someday. I know you’re up in Heaven with our other friends & family that have passed. (& if there’s a way to play golf in Heaven, I know your on the course hittin’ the links!)

(My Dad was a Marine & fought in the Vietnam War & earned 2 Purple Hearts while there. The 1 was for stepping on a landmine & it was so bad, they brought a Priest to the hospital in Danang to give him his last rights. Shortly after that, the hospital got bombed. But he lived another 50 + years after that! Actually, after coming home from the service & healing up he took his career into a different route & became a Titusville Police Officer (Lead Criminal Investigator) for 25+ years!)

Dad, this is for you – OORAH!!!!

Type of Diagnosis

IPF

Treatment / Medical Facility

Titusville Area Hospital / UPMC in Titusville, PA; The VA’s in Erie, PA & in Pittsburgh, PA; Hamot Hospital / UPMC in Erie, PA

Current medication regimen

He was on several meds including an experimental drug for IPF

Lung transplantation status

ineligible

Supplemental Oxygen

yes

Best advice for PF symptom management

*LISTEN TO YOUR DOCTORS & DO AS THEY SAY!

*LET FRIENDS & FAMILY, ETC. GIVE YOU A HAND WITH ANYTHING & EVERYTHING & DON’T BE TO PROUD TO ASK FOR THEY’RE HELP!!


*DON’T BE STUBBORN! LET OTHERS HELP YOU! I’M SURE YOU WOULD HELP THEM IF THE ROLES WERE REVERSED!! (Right?!)  🙂

*KNOW THAT YOU ARE LOVED & CARED ABOUT VERY MUCH BY MANY PEOPLE. 

and last but CERTAINLY not least:

***WEAR THAT OXYGEN 24/7 OR WHATEVER YOUR DOCTOR RECOMMENDS!!!!! PLEASE!!!

Are you currently taking an anti-fibrotic medication?

yes, no

If yes, which anti-fibrotic medication are you on?

Other

How did you find us?

Other

How long have you or the person that you are caring for had PF?

About 2yrs.-ish

Privacy Policy and Terms of Use

I agree