

Robinski
Biography
Name | Robin |
Nickname | Robinski |
Last Name | Thompson |
Year of Birth | 1973 |
Gender | Female |
Location | Titusville, PA; United States |
Relationship | Family |
Short Bio | Hello. I’m the daughter of a wonderful man that just recently, (Dec. 13, 2024), passed away & had IPF. He was 75, almost 76 when he passed. I have been having a very hard time living life without him. Just the other day it came to me, “Instead of sitting around, staring at the wall, crying & being completely miserable all the time from missing my Dad, why don’t I get involved in things to keep my Dad’s memory alive & do things that would make him so proud of me.” So, that’s what I’m doing. (My Dad was a Marine & fought in the Vietnam War & earned 2 Purple Hearts while there. The 1 was for stepping on a landmine & it was so bad, they brought a Priest to the hospital in Danang to give him his last rights. Shortly after that, the hospital got bombed. But he lived another 50 + years after that! Actually, after coming home from the service & healing up he took his career into a different route & became a Titusville Police Officer (Lead Criminal Investigator) for 25+ years!) Dad, this is for you – OORAH!!!! |
Type of Diagnosis | IPF |
Treatment / Medical Facility | Titusville Area Hospital / UPMC in Titusville, PA; The VA’s in Erie, PA & in Pittsburgh, PA; Hamot Hospital / UPMC in Erie, PA |
Current medication regimen | He was on several meds including an experimental drug for IPF |
Lung transplantation status | ineligible |
Supplemental Oxygen | yes |
Best advice for PF symptom management | *LISTEN TO YOUR DOCTORS & DO AS THEY SAY! *LET FRIENDS & FAMILY, ETC. GIVE YOU A HAND WITH ANYTHING & EVERYTHING & DON’T BE TO PROUD TO ASK FOR THEY’RE HELP!!
*KNOW THAT YOU ARE LOVED & CARED ABOUT VERY MUCH BY MANY PEOPLE. and last but CERTAINLY not least: ***WEAR THAT OXYGEN 24/7 OR WHATEVER YOUR DOCTOR RECOMMENDS!!!!! PLEASE!!! |
Are you currently taking an anti-fibrotic medication? | yes, no |
If yes, which anti-fibrotic medication are you on? | Other |
How did you find us? | Other |
How long have you or the person that you are caring for had PF? | About 2yrs.-ish |
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