Forum Replies Created

  • RobJ

    Member
    September 1, 2025 at 1:48 pm in reply to: New drug

    I hope you can get approval. They should grant approval to anyone in these circumstances to give hope and chances to live

  • RobJ

    Member
    August 30, 2025 at 11:56 am in reply to: OFEV Thoughts

    Byron,

    Your letter to NIH is right on target. It is well written and research cited indicates what this organization should use any and all resources to support. Those of us with IPF can take Pirfenidone or Ninetedanib but may suffer horrendous side effects , particularly if we already have serious gastro issues or liver problems. These drugs may slow the progression of the disease but will not cure it.

    Based on the clinical research cited by Byron about CMR -316 and a potential to reverse the damage to the lungs we should all join in the request to NIH to make CMR316 a priority for the FDA to move ahead with studies to gain approval.