Roger Cecil

I was diagnosed about a year ago and, outside of a little shortness of breath, I haven’t really had symptoms.  If a random CT scan of my heart for diagnostic reasons hadn’t identified scarring on my lungs, I wouldn’t have known.  I feel blessed and am exercising, taking my meds and vitamins, keeping up with my vaccinations and hoping for the bes…[Read more]

I have also been blessed with headaches in the morning, but I also attributed them to not drinking enough water.  I don’t get the headaches every day, and when I do, I get up and drink a glass of water and go back to sleep or just get up.  It seems to help albeit may be that I want it to help.  Hard to explain.  I sincerely hope yours go away soon.

My sister died in 2010 from COPD at age 60 (heavy smoker).   My older brother was diagnosed with IPF in 2016 and had a double lung transplant 8 months later, and is ok, but in a weakened condition now (Parkinson’s disease) from agent orange exposure.  My father always had lung problems.  I was diagnosed this past August with IPF, and blood test…[Read more]

I was diagnosed with PF and Wegener’s disease this past August.  I just recently started on OFEV and am tolerating it well.  I am also on Prednisone.  In addition, I have AFIB and take Eliquis daily for it.  My doctor is aware of my meds, but has not altered my dosages.  I will check back with my team to see if I need to make any changes.  I rea…[Read more]