Biography

Name

Robin

Nickname

robin

Year of Birth

1965

Gender

Female

Location

Siloam Springs Arkansas

Relationship

Patient

Short Bio

I am 56 years old. I just celebrated 35 years with the love of my life (Chirs) on December 19, 2021. I have two sons, Kody, 35, and Preston, 30. Two daughters-in-law, Tamara and Parker, and two amazing granddaughters, Abi Kate and Ellie Mae. I realized something was wrong with me for the first time this past September 2021 on our trip to Steamboat Springs, Co. After getting into the correct doctors and getting all tests needed to diagnose. I finally got my answer on January 10, 2022. I have IPF. I am currently in the process of getting OFEV approved by insurance.

Type of Diagnosis

IPF

Treatment / Medical Facility

Mercy Hospital

Current medication regimen

NONE

Lung transplantation status

considering later, to be determined

Supplemental Oxygen

yes

Best advice for PF symptom management

Eat clean, no processed foods, dairy-free, minimal meat like fish only, plant-based proteins, fruits, nuts, vegetables, and grains. Anaerobic exercises, plenty of rest, deep breathing best you can, and a good support group. Surround yourself with the people who encourage you to live each day at the moment. Don’t focus on the outcome of this disease but the current here and now. And most of all, put your trust in your Maker – The Lord Jesus Christ. I find that by taking my fears, anxiety, hurt, anger, and everything to Him, rebuking it in Jesus’ Name, anything that causes fear and anxiety is instantly gone in Jesus’ Name. My Redeemer Lives! And he is in the business of taking care of his children! I have trusted him my whole life, no matter what, and I will continue through this! Just know you can find peace amid your storms!  🙂

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

Not sure – just diagnosed January 10, 2022

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