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Rumana

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@rumana3029

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    Rumana replied to the topic Inhaler Use for Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 months ago

    Yes right Adele as u have Ashthma then it’s safe to do so . But my mom doesn’t have Ashthma then I guess that’s why she has been told not to use symbicort

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    Rumana replied to the topic Inhaler Use for Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 months ago

    Hi Adele do u have asthma as well ? The reason I am asking is that my mom used to use Symbicort before but her current pulmonologist said not to use anymore as this got asthma patients and is she continues to use it it may damage her lung more . She is currently just on Ventolin now

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    Rumana replied to the topic Lung Flush: Ever Tried It? in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months ago

    Hi Charlene I recently ordered this (link below ) for my mom who also has IPF at an extensive stage .It’s not a nasal one but needs to inhale through the mouth .There are no essential oils .Should I try it on her as I am very new to…[Read more]

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    Rumana replied to the topic Diet, alternative treatments/ healing in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months ago

    Has anyone tried Himalayan salt inhaler to treat IPF ? I hear it’s good and has no side effects . I remember reading about it in the forum maybe someone shared a link but can’t seem to find it now .

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    Rumana replied to the topic Inhaler Use for Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 months, 1 week ago

    Does anyone know the effects of Manuka honey in IPF patients ? I have heard  of some patients used a good quality of Manuka honey diluting with water in microwave and using in nebuliser 3 days a week brings good result . Cough can be reduced to 90% as scar also don’t progress. I am planning to try on my mom . She is diabetic so if she inhales th…[Read more]

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    Rumana posted a new activity comment 4 months, 1 week ago

    Best of luck ! My mom can’t even go for medication now as the scars have become so extensive. If IPF was diagnosed in proper time then maybe things would have been different

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    • Profile picture of Christie Patient
      Christie Patient replied 4 months ago

      Hi Rumana, you’ve posted a status update, which only moderators will see. It looks like you were trying to reply to someone.. if you can find the post again, there should be a reply button below their post that will open a textbox. If you’d like to post a new topic in the forums for other members to respond to, select a forum from the homepage and…[Read more]

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    Rumana posted a new activity comment 4 months, 1 week ago

    Thanks Christie me too !

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    • Profile picture of Ginger DeBerry
      Ginger DeBerry replied 4 months, 1 week ago

      I’m new to this. Interested in the Manuka Honey info. Getting ready to start medication.

      • Profile picture of Rumana
        Rumana replied 4 months, 1 week ago

        Best of luck ! My mom can’t even go for medication now as the scars have become so extensive. If IPF was diagnosed in proper time then maybe things would have been different

        • Profile picture of Christie Patient
          Christie Patient replied 4 months ago

          Hi Rumana, you’ve posted a status update, which only moderators will see. It looks like you were trying to reply to someone.. if you can find the post again, there should be a reply button below their post that will open a textbox. If you’d like to post a new topic in the forums for other members to respond to, select a forum from the homepage and…[Read more]

      • Profile picture of Christie Patient
        Christie Patient replied 4 months ago

        Hi Ginger, you’ve posted a status update, which only moderators will see. It looks like you were trying to reply to someone.. if you can find the post again, there should be a reply button below their post that will open a textbox. If you’d like to post a new topic in the forums for other members to respond to, select a forum from the homepage and…[Read more]

  • Profile picture of Rumana

    Rumana started the topic My life has turned upside down in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months, 1 week ago

    Hi everyone …

    I am new to this forum and I have seen so many people dealing with IPF are helping each other so I thought I would share my story and maybe I would be able to get some help as I am completely lost right now. It will be a long post so I do apologize for that.

    My mom is 75 years old and I came to know she has IPF ( stage 4 )…[Read more]

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    Rumana joined the group Group logo of Research and DevelopmentResearch and Development 4 months, 1 week ago

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    Rumana became a registered member 4 months, 1 week ago

    • Profile picture of Christie Patient
      Christie Patient replied 4 months, 1 week ago

      Welcome to the PF forums Rumana, we’re glad you found us.

      • Profile picture of Rumana
        Rumana replied 4 months, 1 week ago

        Thanks Christie me too !

        • Profile picture of Ginger DeBerry
          Ginger DeBerry replied 4 months, 1 week ago

          I’m new to this. Interested in the Manuka Honey info. Getting ready to start medication.

          • Profile picture of Rumana
            Rumana replied 4 months, 1 week ago

            Best of luck ! My mom can’t even go for medication now as the scars have become so extensive. If IPF was diagnosed in proper time then maybe things would have been different

            • Profile picture of Christie Patient
              Christie Patient replied 4 months ago

              Hi Rumana, you’ve posted a status update, which only moderators will see. It looks like you were trying to reply to someone.. if you can find the post again, there should be a reply button below their post that will open a textbox. If you’d like to post a new topic in the forums for other members to respond to, select a forum from the homepage and…[Read more]

          • Profile picture of Christie Patient
            Christie Patient replied 4 months ago

            Hi Ginger, you’ve posted a status update, which only moderators will see. It looks like you were trying to reply to someone.. if you can find the post again, there should be a reply button below their post that will open a textbox. If you’d like to post a new topic in the forums for other members to respond to, select a forum from the homepage and…[Read more]

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