@ruth
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Ruth Edwards replied to the topic Overheating as a Patient with Pulmonary Fibrosis in the forum Diagnosis Information and General Questions 3 years, 5 months ago
In the last two years I’ve become a walking, human puddle. I’m always hot and have to dress in layers, so I’m always able to strip down to just a tank top. This is happening now throughout the year as well. I literally will be fine/dry one minute and then my head feels like it’s on fire, my face is red and I look like someone is holding one of…[Read more]
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Ruth Edwards started the topic Supplements in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 6 months ago
Has anyone or is anyone currently taking NAC supplements and do you find it’s helping?
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Ruth Edwards replied to the topic The Frequency of Changing Your Nasal Cannula in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 6 months ago
Usually the 7ft part, every 2 – 3 weeks…or when it starts to irritate the skin on my cheeks…that seems to be a sign to change. The 50 ft. part about every 2 – 3 months..probably should be sooner. I’m trying out different kinds. One that said it didn’t tangle/knot up so quickly.
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Ruth Edwards posted an update 3 years, 6 months ago
Has anyone else heard of or use this herbal product? N-Acetyl Cysteine (NAC)
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Ruth Edwards joined the group
Research and Development 3 years, 8 months ago
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Ruth Edwards replied to the topic Marital stress in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 8 months ago
No @lwaldschmidt , I have PF. Diagnosed in 2015. Told I had a year…husband very suppportive then…but now I’m in my 4th year and for the last two, we’ve been separated.
We’ve tried getting back together and seeing only each other, while he lives at a different address. It just never lasts and the words we both say from frustration and fear are…[Read more]
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Ruth Edwards started the topic Marital stress in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 8 months ago
Has anyone else lost their spouse because of this disease?
They just couldn’t cope with being on the other side, watching the person they love, dying.
The limitations of the things you can now do because you’re on oxygen grows frustrating and depressing for both.
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Ruth Edwards replied to the topic Tips for Carrying Multiple Items as a Patient with PF. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 8 months ago
Same suggestion. I use my Nexus walker. My liquid oxy tank on the seat, along with my purse with one of the straps wrapped around the handle area. I have a water bottle holder hanging from one of the sides. When I go into a store where there will be a cart, I leave the walker in the car and use the shopping cart for personal and shopping good…[Read more]
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Ruth Edwards replied to the topic Spouse of patient soon to have lung transplant in the forum Caregivers and Spouses 3 years, 9 months ago
This wife started a group on line and wrote a workbook as well. She and her husband Tony are lovely and very helpful.
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Ruth Edwards replied to the topic Herbal Remedies & IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 11 months ago
Thanks Steve, I’m going to look into ordering serrapeptase
Glad to try different suggestions and see if one helps me.
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Ruth Edwards replied to the topic Herbal Remedies & IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 11 months ago
I have been taking Clear Lungs, a Chinese Herbal in capsule form for 3 months now and can’t say I’ve seen a difference. Still hoping to hear about the laser treatments with the chiropractors. Loved the 70% chocolate idea for dry cough. Just so fantastic to see so many ideas being suggested for possible relief of all kinds of symptoms. Hop…[Read more]