[sactom]

I was diagnosed with IPF in 2016. I asked my Dr about my prognosis. He said 50% won’t live for 5 years and the rest will be on oxygen. Then he said “but we have a new medicine that should help” That was Esbriet which I’ve been taking now for 9+ years. So the new medicines have been game changers! Side effects? – yes but worth it. I am just now beginning to take oxygen occasionally. I am now 85 and aiming for 90.

So while the 5 year prognosis might have been accurate back in 2015, today with current meds, the outlook for IPF patients is MUCH better!