Sally replied to the topic Lung Biopsy in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 2 weeks ago
I would be concerned about the mass on your liver and whether or not it could be cancerous. Could they do a non-invasive biopsy on that first? I did have a biopsy in 2014 but it was also (as a couple above) to determine if I had NSIP or IPF. I had been diagnosed with NSIP and the prescriptions for that include prednisone at first and then Ce…[Read more]
Sally replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis Information and General Questions 4 months, 3 weeks ago
The Sequal Eclipse goes to 3 continuous, but it does go up to 9 pulse – that can help !!
Sally replied to the topic Sleeping with head elevated in the forum Diagnosis Information and General Questions 11 months ago
Sleeping with the upper body elevated helps with a lot of things…….coughing, GERD, apnea, etc. Please do not just put pillows under your head. This makes you head bow into your chest area and compromises your breathing. A wedge helps, preferably under the mattress. Put the pillows under your shoulder/upper back for maximum help. Of cou…[Read more]
Sally replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 11 months ago
Be careful that you don’t take too much zinc as it can be harmful in many ways. My doctor said there has been nothing medically conclusive about zinc. He said when it gets out of mice trials and into some clinical trials, we could see some help. But wait til then ! Zinc can be good in moderation.
Sally replied to the topic Traveling with Pulmonary Fibrosis in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 2 months ago
Just an FYI….NO Inogen POC’s go up to 6LPM.. They are settings and not LPM. I have and Eclipse and it goes to 9 LPM on pulse and 3 LPM on continuous. It is heavy but works for me now so that I can travel. I am going to attempt Maui in June. I have two extra batteries and it can plug in if needed, so hopefully OK. I am on 4-5 pulse for w…[Read more]
Sally replied to the topic Household Chores & IPF! in the forum Diagnosis Information and General Questions 1 year, 3 months ago
I leave things on the floor until I can get to them to vacuum or vacuum/sweep to get them up. All of my visitors know it’s hard for me to bend, and no one cares. I also have a grabber tool for bigger things. I do have cleaners every two weeks for changing beds (just CAN’T do that), vacuuming and cleaning kitchen and baths thoroughly. I liv…[Read more]
Sally became a registered member 1 year, 4 months ago
Welcome to the PF forums Sally, thanks for joining us!